Sickle Cell Warriors


 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Let’s Play Catchup

What’s good fam? Has it really been that long?

I can’t believe we are midway through Sept and I haven’t posted a thing. Sorry to all the folks that emailed me, with no response—I haven’t been sick, I’ve just be drowning in a sea of too many responsibilities.

Work: has been a bust. What started out as another contract of fun and growth has turned into an almost nightmare! It’s true what they say, “Familiarity breeds contempt”. There is a charge nurse on nights that has an axe to grind with me and she is seriously on my case, every single night! We are scheduled to work together almost every day, so this has made my job really difficult. I won’t get into it on here (I’ll save it for the nursing blog), but I’ve had moments in the last 3 weeks that I just wanted to quit! Thank God for good friends on the job that have kept me sane….

School: has been busy but rad. The present class I’m taking is so challenging but I’m learning alot. Last week I had to do a brochure on pulmonary fibrosis…I got the highest grade in the class, it was so fetch! I’m planning on getting an A on this class, so I’m really putting my nose to the grind.

Relationship: has been great. Norio is such a blessing in my life, don’t know what I would do without him. He actually switched his job to work nights too, so that we both would be on the same schedule, and I must say, being both nocturnal has its perks! Now we schedule are breaks at work together and I can vent all night long…lol! Today after work we went to test-drive cars and found the perfect fit for both of us. Now we just have to come up with the money!

Nicosan: flipped me out one night! I don’t know if it was the combo of taking Nicosan on an empty stomach or if I was just feeling ill, but I totally threw up 10 minutes later (at work!) I’ve been kind of wary ever since, but nothing else has happened—maybe it was just a fluke. So now I’m taking it with my meal…right in the middle of dinner, that way there is food coating it on all sides.

Sickle Cell: is down and out. No episodes, no crises, no pain. Go Nicosan!

Okay, so that’s the scoop on me—what about you guys?


About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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