Sickle Cell Warriors


 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...


I’m an avid blogger. I’ve discovered blogging since 2005 and have loved every moment of it. I blog about everything, my life, my relationship, my family and my career. The only thing I haven’t blogged about is my illness? Why? Probably because it’s still kind of strange for me to talk about it. I hate to be pitied—so I rarely talk about having it, because for some reason, people don’t know how to react when they hear you have sickle cell. Dude—it’s not like I have AIDS…chill out man!

I did a search on Google and every blog directory I know—and couldn’t find a sickle cell blog to save my life. It was only on Technorati that I found 8 and none of them were updated consistently or had more than 1-3 posts. On top of that they were so cheery and…unreal. They made sickle cell sound like a walk in the park, and I know firsthand that it’s no joke. So here is my attempt to fill the void with the real gritty truth.

For some reason, Sickle Cell Anemia is like the ugly stepsister of genetic blood diseases. It affects 80,000+ people in the US and yet doesn’t have a walk dedicated to raising funds for research. There is no red ribbon or dedication to follow through on what research that there is. It affects even more people in the world and yet it doesn’t have a cure. You FUCKERS CAN CURE SMALLPOX & POLIO,–so what is so complicated about sickle cell? Jeez louise!

FYI: This ain’t your momma’s blog. There will be curse words, and there will be lots and lots of venting. You’ve been warned. If you aren’t afraid, if you want to learn more…then by all means, read on.


About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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