Sickle Cell Warriors

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 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

I’m Alive

Okay, so I didn’t plunge 14,000 feet to my death! It was soooooo fun that I’m ready to do it again. Norio was being so ‘cautious’ and he doesn’t believe in risking your life for no reason…he didn’t even go up! Personally it’s one of the most exhilarating things I’ve ever done. Live outside the box darlings!

Right now, it’s wet and soggy outside…I must say, I absolutely HATE Portland weather…it’s summer for crying out loud! I really want to go lay on the beach in Mexico somewhere for a whole year just to get my sun on and payback for this lousy cloudy, rainy year.

My arm and leg are hurting today, nothing major, just L2s…I think it’s because of the coldness seeping into my bones. Grrrr. Pain, pain, go away! I’m on vacation dammit!

Have a great week everyone!

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Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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1 Comment

  1. Baby be
    Baby be August 23, 12:50

    Hello my name is Hampton I have sickle cell thy beta iam 63yrs old from Jacksonville FL been in the hospital for18 days now get out tomorrow. By the grace of GOD and I know he is keeping me on this earth for a reason to do his will . SO Who you are that’s reading this stay with GOD and he will keep you .love you all and I will keep you in my prayers have a Blessed Sunday

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