Sickle Cell Warriors

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  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

December 10, 2010: This Week in SC News & Research

Researchers from the University of Chicago and Loyola University are studying the transmission of malaria by the Anopheles mosquito. The researchers are trying to inhibit the transmission of Plasmodium (the bacteria that causes malaria) by giving the mosquitoes a protein called FLVCR which will then alter the gut of the mosquito and change the molecular makeup of plasmodium, making it…unable to cause malaria. It is quite interesting stuff, and looks to be a promising line of research. Read more about it HERE.

HemaQuest, the biopharmaceutical company that is doing clinical trials for HQK-1000, has just had an executive change in leadership. HQK-1000 is a medication that stimulates the production of alpha-feta-proteins and red blood cell production, and has shown in a small clinical trials, enough worthiness as a potential sickle cell drug. HQK-1000 has been granted orphan drug status by the FDA in both UK and the US. Read more about it HERE.

Aes-Rx has gotten Orphan Drug status by the FDA. We talked about their new drug last week, and this means that they can move forward to the next stage of research. Hopefully if things progress well in the clinical trials, we will have another treatment alternative besides Hydroxyurea. Read more HERE.

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Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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