Sickle Cell Warriors

Articles

 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Childhood: From Diagnosis to 10

When I was four, I was diagnosed with sickle cell anemia. It was in Nigeria, way back in the 80’s, and my mom was told by the doctors that I wouldn’t live past childhood. I’m the firstborn child, long awaited for five years and deeply celebrated by my family for coming into this world. There is no way in hell, my mom thought, that the child that God had given her after so many years of prayer and disappointment would end up an abiku, which in Yoruba means a ‘child born to die’. She was like Oh Hell No—that is not happening Doctor!

My parents did everything to make sure that I had the best health care possible. We moved to the US that same year and I remember seeing the pediatrician regularly every few months. I hated taking the Penicillin pills—Yuck, yuck, yuck! I still have flashbacks anytime I have to take antibiotics by mouth till today.

Fast forward past the years of living in my own bubble, prevented from taking part in rigorous activities, sports or even swimming. It was real awful not being able to wade at the beach while my siblings had their fun and frolic because everyone knew that come nightfall my ass was gonna fall sick.

Somehow my family managed to maintain a normalcy despite the crippling crises that assailed us every 4-5 months. When I turned 10, we moved back to Nigeria, and then it became…somewhat weird.

Tags
Share

About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

Related Articles

0 Comments

No Comments Yet!

There are no comments at the moment, do you want to add one?

Write a comment

Write a Comment

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Donate

Support awareness & education for SCD

WordPress › Error

Error! Donation amount must be a numeric value.