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Living with Sickle Cell

Posts feature topics on work, school, travel, life, diet and all other coping strategies with sickle cell.

Addressing Health Disparities

How can we address health disparities in our own communities? What works and what doesn't? @NICHQ

SCW Video: Going With The Flow

https://www.youtube.com/watch?v=I3uX3eftME8

Health Disparities

How do you think we can reduce health disparies for people all over the world? How do we raise our voice in our community? @NICHQ

Get Your “Sickle Cell Matters” T-Shirt

“Sickle Cell Matters” T-Shirt awareness raising/fundraising campaign Purchase your T-Shirt by clicking here! Wear it in support of World Sickle Cell Day on June 19th This link...

Comments on Practice Guidelines for SCD

The American Society of Hematology (ASH) is seeking comments on two additional draft clinical practice guidelines on sickle cell disease (SCD): pain and transplantation....

SCW Video: Fatigue

https://www.youtube.com/watch?v=wgHk756uCT4

SCD Cure through Stem Cell Transplant

Exciting news!! Akshat Jain, MD, Director of Pediatric Hematology-Oncology at Loma Linda University Children's Hospital and his team cures a Sickle Cell Disease patient through...

Sickle Cell Phone Survey Opportunity for Patients and Caregivers!

This patient and caregiver survey seeks to understand the experience sickle cell patients have had with their disease as well as their interaction with...

Webinar “What’s New at SCDAA”

SCDC Sickle Cell Data Collection program Register for Webinar "What's New at SCDAA" Wednesday, April 24, 2019 10:00 AM - 11:30 PM PST Register now:  https://attendee.gotowebinar.com/register/1778776015181580301     Presented by Ms. Beverley Francis-Gibson, SCDAA President...

Support the Global Genes Team

Global Genes has formed a running team for the OC Marathon to raise money and awareness for rare disease community activities.  Warriors - join...
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