Sickle Cell Warriors

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Stop Mistreatment of Sickle Cell Patients in the Emergency Room

    Stop Mistreatment of Sickle Cell Patients in the Emergency Room
Question: G. Jones says, "What can we do to stop mistreatment of SCD patents in Hospital and being lable as Drug seekers. Like our pain is not real. We are not
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Meet KiAnna – Daughter, Wife, Warrior

    Meet KiAnna – Daughter, Wife, Warrior

Hi, my name is KiAnna and I’m 24 going on 25 this spring. I’m adopted and the oldest of 11. 5 adopted, 5 biological to my adopted parents, and 2

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You Can Make a Difference!

    You Can Make a Difference!

Hello everyone! Sickle Cell Warriors, we often hear complaints that there is not enough being done for Sickle Cell Disease. I’m extremely disappointed to find out that out of over

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5 Tips for Managing Avascular Necrosis in Sickle Cell

    5 Tips for Managing Avascular Necrosis in Sickle Cell

Many of us with sickle cell suffer from avascular necrosis of the hip, where the bone is damaged by sickle cell blockage, leading to a prolonged limp, pain on that

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Who’s Really On Your Team?

This week was a sad week for my family because after twenty years, I have decided to transfer to another hospital for the medical care for my 8 year old

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Get Well Wednesday: RN Tosin Ola Answers Your Sickle Cell Questions

Hey Warrior Fam, Check out our Founder, Tosin Ola’s interview with the Tom Joyner radio show. Repping for Sickle Cell all the time. Awareness is integral and we all must

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Isata Lakoh – The Most Important Day

    Isata Lakoh – The Most Important Day

The most important day of my life is the day my parents explained the essence of the pain I have

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Research Study Request: Chronic Pain in Sickle Cell Disease

    Research Study Request: Chronic Pain in Sickle Cell Disease

From time to time, we get requests from researchers who would like members of the sickle cell community to participate

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Sickle Cell Action Network at 1pm PST Tuesdays

    Sickle Cell Action Network at 1pm PST Tuesdays

Here is another excellent  resource dedicated to sickle cell disease. Gary Gibson, President of the Martin Center Sickle Cell Initiative

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Ode to the Caregiver

    Ode to the Caregiver

To all the Warrior Moms, Dads, Lovers, Sisters, Brothers, Husbands, Wives, Children & Caregivers. This one is for you. Thank

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Roasted Beets and Sweets

    Roasted Beets and Sweets

This recipe has all the earmarks of being perfect for those with sickle cell; great root vegetables, easy to prepare, and rich in thiocyanate

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Sickle Cell Warrior Heather on Dr. Phil Show

    Sickle Cell Warrior Heather on Dr. Phil Show

One of our esteemed Warriors in the Spotlight, Heather Avant was featured on the Dr. Phil show on December 17, 2015.

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Am I The Worst Patient?

    Am I The Worst Patient?

I don’t think so! I have been very compliant. I am so frustrated. I had surgery almost 5 weeks ago.

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Bi-Annual Update of Sickle Cell Warriors™

    Bi-Annual Update of Sickle Cell Warriors™

Hello Warrior Family! This letter is a year late but I finally finished it. Apologies for the delay. Read on

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Has SC Hit Your Finances?

    Has SC Hit Your Finances?

Sickle Cell has had a major negative effect in my finances for the last 6 years. Many people don’t pay attention to how this struggle is and how doing it

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From CT Sickle Cell Org---my favorite SCD PSA.

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