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  • Sickle Cell and the Key to Happiness The Key to Happiness November 11, 2017  Written by: crystalmccrory32 My son has a form of sickle cell anemia that has caused him great pain and suffering throughout his life....
  • Sickle Cell Disease Handbook by APHON Sickle Cell Disease Handbook for Patients & Families The Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. The Sickle Cell Disease Handbook provides an...
  • Sickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017 Sickle Cell Warriors has exclusively partnered with Global Blood Therapeutics (GBT) to livestream the Annual Sickle Cell Disease Therapeutics Conference from New York City on September 14 at https://www.facebook.com/SickleCellWarriors/. This is...
  • Tips to Prevent Sickle Cell Crisis in the Summer Related posts:Bone Marrow Transplant + Chemo is the new CureTaking Control of Your Medical ChartSigns of Sickle Cell Pain in Babies...
  • Love Overcomes Sickle Cell: Meet Linda & Steve I’m not a warrior but I’m a warrior wife, so I’ve been on the other side of your story. I hope that this gives you hope and courage to face...

Catch Up

Wow, it’s been 10 days since my last post. Part of the reason is that I’ve been out of town chilling with my family in Indiana. The flight’s were long but I had no problem. No crises and very minimal pain to speak of.

Another thing happening is that I’ve been revving up for my mom’s arrival. She’s coming from Nigeria to visit for a week…and it’s been such a stressful thing getting my crib “Parent Worthy”.

See when I’m home by myself, I have clothes lying around, papers unfiled and not everything in it’s proper place. My mom is a organization queen, and I know that anything not in it’s place is going to get a derisive snort from her. Other than that, I think the visit will go well.

Another thing is that I’m planning Norio’s Birthday Bash this Saturday. It’s kind of a weird timing because my mom is here and I’m scheduled to work that night, but the show must go on. I’ll let you all know how that turns out. And of course, my second course started in school this week and the reading material alone is time consuming. I just can’t wait for school to be over already!

Sickle cell wise, I’ve been doing great. I got 6 more bottles of Nicosan from my mom, so I”m stocked up for the rest of the year.

I hope everyone is doing well. Summer is usually my best time of the year—I don’t know if it’s just me or other sickle cell warriors as well, but those months are usually idyllic with very little pain. Come fall, it’s a whole new ball game.

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Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin’s message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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