Sickle Cell Warriors


 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Back From Another Crises

First of all, I will update the ticker. Now it’s only been a 5 days since my last admission, bummer—what a way to start the year. But I’m not going to gripe about it, such is the lot in my life. Everyone has their burden to bear.

Last year I had 3 major hospitalizations, actually, it was a better year than before. It’s just that I still feel like I can do better. For the last 3 years, I’ve been getting a crises in January like clockwork, I almost expected it this time, even though my timeline wasn’t right on the 3-4 month mark yet. At least this means I’m good until May…I hope I’ll skip the March Madness crises.

This year I start with just one. I’m going to take better care of myself, rest, eat right, exercise and drink my Arginine like it’s the elixir of life. I have to kick this sickle cell this year because I have so much planned, my wedding, my trip to Nigeria and then all the plans on the new house. I don’t even want to be sick anymore, I feel like it’s such a waste of my energy.

Yeah, waste of energy. It doesn’t make sense but it is, being sick drains me and everytime I fall sick I feel like I have to start back up again from the ground up with work, life and routines. I feel like I get a good groove going, a regular life cycle and then with every crises everything shuffles all over again.

Enough melancholy. Thanks for your lovely emails and kind thoughts. We are all in this together.

Happy New Year everyone.


About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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1 Comment

  1. Diane Pace
    Diane Pace October 12, 05:23

    That is how I felt a lot of the time.

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