Sickle Cell Warriors


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Am I The Worst Patient?

Am I The Worst Patient?

I don’t think so! I have been very compliant. I am so frustrated. I had surgery almost 5 weeks ago. It’s been terrible. I had surgery on my left arm. All I can do is keep it elevated. I can’t cook, clean, knit, crochet or do anything I would like to do. I can’t type. I have typed these last articles one handed on my iPad. It only took three times as long. I can’t even read. I can’t hold a book and turn the pages one handed. Every time I read on my ereader or iPad the page changes orientation and is facing the wrong direction. Feel bad for my husband. For five weeks he has been a saint. He has walked the dogs, cooked dinner, cleaned and done everything! He has listened to me complain! He is the true hero of this story.

I have been good and done what I am suppose to do, but I am getting worse. My doctor hematologist had me go back in to have my arm checked at the surgeon and I did not want to but she was right. It was far to large. My hand/arm got bigger instead of smaller. They thought I had blood clots. Two days ago I had to have my arm checked again (surgery). I have a small infection and stenosis. Did you know it’s hard to do anything with one hand? I didn’t think it would be this bad. I was so wrong. The hardest part is keeping my spirits high. I have a friend who came over to visit. I have talked on the phone since I can’t drive well. I have limited my driving one handed to doctor appointments only.

I have adapted let me tell you how. I can’t read, so I am listening to podcast and audiobooks. I can’t knit or crochet so I have found all these nice patterns to make when my arm finally heals. I have bought yarn at the yarn store, but mainly online at websites I never knew existed before. I spend my days listening to books, podcast, reading, discovering websites I never knew existed. Watching tv shows I never heard of before. My favorite new pastime sleeping. I never sleep. I have caught up on my sleep. I play with my dogs. I look at food network shows, then google the vegetarian version of the recipe. I have tried to keep good sprits, yet I had a day where I was really down. I texted a friend and she was there for me. I am a lucky girl. I know that.

The downside I have gained 15 pounds I’m guessing. I won’t step on a scale. I am wearing workout clothes and sundresses so all my clothes fit, but my face is fat. and I have visibly gained weight. They made me step on a scale before surgery two days ago. It was in kilograms and I haven’t translated it. I can’t exercise, my yoga has been restorative only. With a few splits and things you can do without the use of your arm.
All in all I have learned a lot about myself and I can be a good patient.
How have you dealt with challenging times in your life and illness? What have you done to keep your spirits up?


About Author

April Farrell-Hasty

April Farrell-Hasty

I am first and foremost a patient with sickle cell anemia. I chose to treat my illness more holistically. I have been a vegetarian for more than 25 years. I use homeopathy, accpunture, along with allopathic medicine. I have volunteered with the sickle cell foundation for decades. Working as a mentor and working with parents whose child was just diagnosed with sickle cell. I have also worked with teens who were aging out of peadatric sickle cell and not quite ready for the adult group. Because they were off to college. I've also talked a few over protective parents of sickle cell kids into allowing their child to go away to college. I've organized sickle cell retreats. I train yoga teachers and teach yoga. I specialize in restorative yoga. I chose to work with people who need yoga. People with chronic illnesses, people who have a lot of stress. I feel people who are chronically ill need yoga to help manage the illness. I teach patients with all types of disease, and yoga has helped them maintain or get better, rather than getting worse. Most chronically ill people get worse. Yoga helps ease the stress of illness, and learning to breathe properly helps manage pain. It has proven to be very beneficial for people with fibromyalgia, arthritis, sickle cell anemia, and other illnesses. Restorative yoga helps maintain homeostasis. I also teach more physical types of yoga. I have certifications in personal training, wellness. I am a reiki master.

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