About Us
About Company
THE SCW FAMILY
is comprised of parents, children, teens, husbands, artists, healthcare workers, researchers, wives, professionals, advocates, activists, and students.
We have members from every tropical region, several Islamic countries, South American, Europe, Africa countries, Indian and Asian populations.
You will find someone to connect with - I guarantee it. So reach out and be part of this family. This is a ‘judgment and criticism free zone‘. You can truly let your guards down and be 100% authentic.
Drop us a line, even if it’s 2 AM, there is always someone here, probably another night owl just like you ;).
My name is Tosin and in May of 2005, I was hospitalized, in pain, sad, and lonely. I searched for several hours online for a community like this one and at that time there was none. That same night, I started a blog, which grew into this website, a vibrant Facebook community, and the Sickle Cell Warriors movement.
My life hasn’t been easy with sickle cell, and yet, through all the adversities, God has ordered my footsteps and given me strength to overcome and live my life to the fullest potential. That’s why I will continue to hold the doors of Sickle Cell Warriors Inc open because all of us deserve the love, community and care we need to keep on rising above everything thrown our way. We are warriors after all 🙂
Tosin Ola-Weissman
FOUNDER
Want to read more from me?
Why Support Us
Pillars of Mission Statement
EDUCATION
Educate Yourself
At Sickle Cell Warriors, learn about the real face of the disease. Educate yourself first so you can educate others. You are a whole person and SCD is a complicated condition. There are so many facets to sickle cell disease management, many aspects that go beyond the medical side that your physician can explain. This website exists as a portal of information dissemination. There is a huge library of articles that is bound to answer some of your questions. Complications…your period…diet…money matters…the workplace dynamics.
- Why can't you sleep at night?
- Why do you sometimes have memory loss?
- What's with the itching?
- What about the psycho-social aspects?
(How do you date? Should you get pregnant? What’s the deal with alcohol? Can you get a tattoo?)
- What alternative remedies help with sickle cell?
- What symptoms and complications should you be on alert for?
EMPOWERMENT
Empower Yourself
The sickle part of you may be weak, but you my dear, are a strong warrior! The oldest person in the USA with sickle cell is turning 87 this year.
Each day is a testimony of your courage and strength. Your goals, dreams, and aspirations should not be left by the wayside because you have sickle cell.
You just have to come up with a creative way to accomplish your dreams. You need to be patient, work hard at it, and take it slow.
Even if you get knocked back with a crisis or pain, know that tomorrow is coming, and you will get up again and fight. Never, ever, ever give up your dreams and goals.
AWARENESS
Raise Awareness
Many of us lived our lives keeping sickle cell a big secret. If we don’t talk about sickle cell, how will the PUBLIC understand?
Learn how to share your perspective and raise awareness about sickle cell in your personal life, relationships, friendships, community, workplace, school, and the world.
Breaking the silence can be hard, but we have tons of tips and advice to get you talking!
Use social media to the fullest extent and join one of our many challenges.
Check out tutorials and videos at http://YouTube.com/SickleCellWarrior and http://twitter.com/SCWarriorTweets.
Other sickle cell warriors all over the world can relate to this, we are all fighting the same struggle and going through the same things.
You are not alone. So speak up. Even if you just illuminate 1 person a week, your impact is made on the gross ignorance that exists worldwide about sickle cell disease. ”
ADVOCACY & ACTIVISM
Get Involved
Do you want to be more involved in the greater sickle cell community? Do you have plans to meet other activists, raise funds, become an advocate, organize an event for sickle cell, write a book, or start your own group? Well then this is a great place to get started.
Join hundreds of active sickle cell advocates who are passionate about raising awareness about sickle cell.
Network with other groups and organizations, and get motivated and encouraged to make something happen!
One of our core missions is to unify the entire sickle cell community.
We promote events of all other organizations on the website, publish numerous articles and videos with tips for advocacy, and spearhead several advocacy events throughout the year.
We also have a quarterly advocacy training class that is great way to jumpstart your activism. Learn more or sign up for the next class: http://sicklecellwarriors.com/classes/