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6TH ANNUAL LEADERSHIP SUMMIT & GENERAL ASSEMBLY OF PATIENTS, CAREGIVERS AND CBOs
Gave a talk at 6TH ANNUAL LEADERSHIP SUMMIT & GENERAL ASSEMBLY OF PATIENTS, CAREGIVERS AND CBOs on Networking Event – CBO Roundup . Thanks for the great turnout! #SickleCellSummit #SickleCellSummit2022 #LeadershipSummit2022 #SickleCellConsortium2022 – via #Whova event app
Read MoreSCCC Leadership Summit
Sickle Cell Warriors, Inc. (SCW) is excited to be part of the SCCC Leadership Summit. On Wednesday, at 530pm PST, SCW will share some of our exciting new programs and initiatives during the CBO Roundup. For the first time ever, the Leadership Summit is open to the general public. This includes all SCD stakeholders! It’s not…
Read More8th grade author writes self-help book after overcoming health battle
BY SHEENA ELZIE CINCINNATI PUBLISHED 7:45 AM ET MAR. 02, 2022 MORROW, Ohio — The pandemic is bringing more attention to kids’ mental health. One teen is now trying to help through a new book she wrote. What You Need To Know Nyla Barnes, 13, authored a new self-help book to help kids cope with stress and…
Read MoreBlack History Month Midwives 2022
Did You Know: Black Midwives Most midwives, including enslaved women, drew upon traditional healing knowledge and practices passed down through generations. Throughout the years, despite efforts to marginalize them by the medical establishment, Black midwives have continued to play a critical role in delivering babies and training the next generation of Black birthworkers. This #BlackHistoryMonth…
Read MoreBlack History Month Celebrate 2022
February is Black History Month – a time to honor the incredible contributions African-Americans have made to this country throughout its history. In celebration of this year’s official theme, Black Health and Wellness, we join #NICHQ in uplifting and building on the incredible work of Black scholars and medical practitioners in Western medicine, as well…
Read MorePublic Meeting: FDA Rare Disease Day 2022
FDA will host a virtual public meeting on March 4, 2022, 9:00 am to 4:30 pm EST, to join the global observance of Rare Disease Day. The theme for FDA’s Rare Disease Day is “Sharing Experiences in Rare Diseases Together.” During the meeting, various stakeholders will share their perspectives on and experiences in rare disease product development. Please visit the public meeting page to register for the event. If you are a…
Read MoreBlack History Month Mothers & Children 2022
The Impact of Institutional Racism on Maternal and Child Health Understanding the history associated with the persistent health disparities impacting the Black community is a vital step toward dismantling policies and practices that continue to adversely affect Black maternal and child health outcomes. Institutional racism—racism that began with the enslavement of Black people—was embedded in…
Read MoreBlood Drive Opportunity!
Sickle Cell Anemia Awareness (SCAASF) is a nonprofit organization with a focus to bring about a greater awareness of sickle cell disease, advocate for improved healthcare and educate to empower those individuals living with sickle cell disease. Sickle Cell Disease (SCD) is a blood disorder that requires individuals to receive transfusion and blood exchanges on…
Read MoreHow can I help the SCD Community?
BECOME A CARISMA HEALTH COACH! What is CaRISMA? CaRISMA is a program for adults with sickle cell disease (SCD) that experience daily pain. The goal of the program is to identify treatments that do not rely only on opioids/narcotics or other medications. Participants learn about SCD or cognitive behavioral therapy (CBT) via short interactive lessons…
Read MoreQuote of the Week
All the variety, all the charm, all the beauty of life are made up of light and shade. ~Leo Tolstoy
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