Support the Global Genes Team
Global Genes has formed a running team for the OC Marathon to raise money and awareness for rare disease community activities. Warriors - join...
FDA Public Meeting – Patient Perspectives on the Impact of Rare...
Registration Open: FDA Public Meeting - Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities
On Rare Disease Day, FDA announced the Agency will host...
Show Your Rare!
The #ShowYourRare campaign was launched in 2018. The campaign has inspired the Rare Disease Day 2019 poster and videos.
Rare diseases affect an estimated 300 million people around the...
Rare Disease Day Countdown!
Hello warriors!
We have just over a week until February 28th, which is Rare Disease Day! In the US, a rare disease is defined as...
Get the Match Livestream
Get the Match Livestream
September 28 1 pm - 4 pm PST (8:00 pm - 11 pm GMT)
There is a point in which all of...
The SC Warrior Team is Expanding
Do you love to write? Are you a social media master? Do you create amazing graphic designs? Apply today to become part of the...
No More Lifespans!
Join Tosin in this video to learn why you should disregard the number your doctor gave you about your lifespan. Be inspired to join...
7th Annual Sickle Cell Disease Therapeutics Conference
The 7th Sickle Cell Disease Therapeutics Conference is a forum to discover the latest advancements and future trends impacting the sickle cell community. Conference...
2018 SCD Seminar & Hotel Registration
Reserve Your Hotel Room Today!
All SCD Warriors who register before August 15th are guaranteed a bed at the fabulous Courtyard by Marriott! That means,...
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