Sickle Cell Warriors

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  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Vacation Plans

Hello darlings,

Do you like my spiffy new signature? I saw it and totally fell in love with it. Bonjour from the beautiful city of Toronto…I had such a blast and I can’t wait to go back. The trip was lovely—no sickness whatsoever, the people are great and it’s truly a city of multiculturism. I almost want to move there!

School has been a bust, my new teacher is a PIA, but I’m hanging in there tryng to keep my 4.0. I’m just 2 classes in and I’m feeling overwhelmed already. I think it’s more time management than anything, I spent 6 hours reading the new Acheron book versus working on my paper. What can I say…work hard, play harder!

No news on the Nicosan front. I’ve been taking it as religiously as I can being that I’m not a pill person and so far it’s been treating me really well. I barely have pain anymore…probably 10% versus the 85% of the time that it used to be. If anyone is interested in ordering this, please email me and I’ll send you the info.

I’m looking at my work schedule and it looks like I have 10 days coming up with nothing to do. I want to do something really cool and exciting, but airfare is a beeyotch right now, darn energy crises. Flying to Toronto was 600 bucks even though I bought the ticket hecka early.

Anyway, here are my options for my August trip.

1. Stay in Portland, drive up to Seattle for a few days to see my cousin.
2. Fly to Alabama to see my best friend who just got her heart broken.
3. Fly to NJ to annoy the heck out of my sister the Diva.
4. Go on one of those last minute trips to an exotic locale like Barbados, Mexico or St. Barts to get more stamps on my passport.

Leave your thoughts after the jump.
Hugs and I hope you are doing well.

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Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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