Sickle Cell Warriors

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 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

This Week in Sickle Cell Research

Hey everyone, not much happened in sickle cell research this week, but two news pieces caught my attention.

Research from the University of Minnesota has solidified the fact that sickle cell pain can be treated with canniboids (aka Marijuana). It’s not breaking news on the streets but now those that have hypothesized and used marijuana for treatment of chronic sickle cell pain now have the scientific research to back it up. Read more about it HERE.

On the west coast, things are heating up for L-Glutamine, a potent amino acid, as a treatment for sickle cell. L-Glutamine inhibits cell adhesion, which means that it stops sickle cells from clumping together. The drug, which can be taken orally has just entered Phase 3 clinical trials last week, meaning that it might be on the shelves for public use later on in the year. Other research is exploring essential amino acids like gluthathione and cysteine, but so far, the research for Glutamine is further along. Read more about it HERE and HERE.

And this is the end of this weeks roundup of strides in sickle cell. See you next week:)

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Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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