The Sickle Cell Diet Video

Sickle Cell Diet Hey guys, I just lost an amazing seven pounds on the sickle cell diet plan! You didn’t know about the SC diet plan? Oh, my gosh, you have to try it. Like, it’s amazing. It’s the best. Any time you want to lose a little weight, first you have to make sure…

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No More Lifespans!

Join Tosin in this video. Learn to disregard the number your doctor gave you about your lifespan.  Join her in saying, “No more lifespans!”

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Sickle Cell Spoken Word Poetry

Spoken Word Spoken word is an oral art. It melds words and phrases together in beautiful patterns. Intonation and undulation punctuate these patterns in spoken word. Take a moment to hear this amazing spoken word poet. Let’s shine a light on the world of sickle cell.  We hope you are as moved as we are!

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Video: Failure is NOT an Option

  Charmaine made this wonderful video that I just had to share with everyone. The more I do this, the more I realize that we are all so very, very, connected. It really made my day so I’m sharing it with everyone.  Well done Charmaine! Keep living, striving, and fighting. xxx~SCW  

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The Greatest Advocate

You are your greatest advocate. When ever you are sick, you’re in the hospital, or even emergency room, use the greatest tool that you have in order to make sure that your needs are met and that your health is a priority. The person that has the greatest stake in your health and well-being is…

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Pain from a Shower

Another sickle cell fun fact: taking a shower in the mornings may lead to a painful sickle cell crisis. Check out the video below and share your experiences.

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Pain Management in the Hospital

  If you are in the hospital, in a crisis, and your pain is not under control….what should you do? You must be assertive in your care. Don’t be rude, or aggressive, just strongly assert your needs, knowing and insisting that your needs and rights are prioritized. Here is a short video that may give…

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For Teachers: Sickle Cell Disease at School

For educators, parents and children with sickle cell disease, this video is a good point of education on the challenges faced by children and adults with sickle cell disease. You can send this link to each of your childs’ teacher…and it will help start the conversation so that the teacher knows what to expect, and…

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Fatigue and Sickle Cell

Sometimes, you don’t have pain, but really don’t have the energy to go out and hit the town. Your blood counts are low. You’re tired. It’s not a crime.

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