Hello everyone! Sickle Cell Warriors, we often hear complaints that there is not enough being done for Sickle Cell Disease. I’m extremely disappointed to find out that out of over 100,000 people with SCD in the US and millions abroad, only a few have completed this survey. How can we
From time to time, we get requests from researchers who would like members of the sickle cell community to participate in various types of research. This inquiry has been pre-screened, and your info will be kept confidential and private. Please use your own judgement, and only proceed if you fee
Here is another excellent resource dedicated to sickle cell disease. Gary Gibson, President of the Martin Center Sickle Cell Initiative has been hosting this amazing show for the last few months. Tune in every Tuesday, 1pm PST/4pm EST to get your latest news and happenings in the sickle cell community,
Breaking news from all around the world in #sicklecell disease. Stem Cell Transplant Adult Successful stem cell transplant of 12 adults with sibling matches (half-match) at University of Illinois Hospital & Health Sciences, Chicago. 92% cure rate, 1 reversal (that patient did not follow protocol post-transplant). Great news! Read more
Hello Warrior Family! This letter is a year late but I finally finished it. Apologies for the delay. Read on and you will see why… It’s been a while since I last penned an article on here. Thank you so much to everyone that has emailed, texted, called, and posted
Hello everyone! As you probably know, World Sickle Cell Day is around the corner on June 19th! This was established by the World Health Organization (WHO) and is celebrated all over the world. A few years ago, most of us didn’t know when it was, and if we did, we
WOOHOO!!!! We made it! The 2014 Sickle Cell Warriors Gathering is now officially over! Thank you so much for everyone who has attended and made this experience phenomenal. Lakiea & I hope that you found it extremely informative, educational, inspiring, and supportive. There are so many people to thank, so
We received this message for Advocacy day. Although you are not in Washington DC, you can still help today. Leave a Facebook message, tweet, or email your state representatives asking them to support the Re-authorization of the Sickle Cell Treatment Act. #sicklecellTA. Read below for more details. Here is how:
Check out this inspiring story about a sister that took her sickle cell journey to whole new heights…literally.
Ernestine Diamond, the oldest recorded person with sickle cell in the US is 83:)
Did you know that your #SickleCell Birthday is around the corner? SCW shares her personalized letter to friends.
This was the newsletter that was mailed out to those that signed up for our monthly newsletters. It was delivered right to your email. Go into hot topics from the Facebook page, advocacy training, and details about the cruise.
Get involved with a research study. Just a chance to do something to help the general scientific community
Have you ever wanted to get together with a group of Sickle Cell Warriors, your family, and friends on a vacation where you got to share your life experiences? Well then, this cruise is specifically designed just for you.
So much good research, so many positive strides! Wanna know the latest and greatest in sickle cell research and advances? Get a short summation that will boost your spirits.