Posts Tagged ‘Parents and Caregivers’
SCD Adult Support Groups in Southern California
Cayenne Wellness Support Group California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. Specifically, you get to meet others with SCD and get valuable info about improving your health. In addition, you also gain an understanding of how others cope…
Read More5th Annual Lowcountry Sickle Cell Disease Symposium
5th Annual Lowcountry Sickle Cell Disease Symposium Therapeutic Options in Sickle Cell Disease Saturday, April 28, 2018 MUSC Drug Discovery Building 97 Jonathan Lucas Street Charleston, SC Conference Description Sickle Cell Disease is the most common inherited blood illness. Due to improvements in childhood care, many more patients are living into adulthood. There not enough…
Read MoreRegistration Open for Sickle Cell Patient & Family Convention 2018
Registration Hello Warrior Family, Registration is now open for the 2018 Annual Sickle Cell Patient & Family Educational Symposium. To learn more visit www.sicklecellconvention.com. In conclusion, this is the same one that we have done for the past 3 years. It will be in Los Angeles, CA from July 28-31. Above all, hope to see…
Read MoreSickle Cell and Endari
**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website. Hello everyone, great news! Endari is available as of December 17. Endari is a concentrated form of L-Glutamine. Its formuls is for sickle cell disease. When taken as directed, it has…
Read MoreCan Sickle Cell Patients Get Malaria? Yes, You Can!
Can a sickle cell warrior get malaria? There is a myth pervasive in the medical and sickle cell community that for some unknown reason sickle cell gives you immunity to malaria. This is NOT true! One of the worst childhood crisis I had was when I turned 12. It was triggered by malaria, and quickly…
Read MoreHappiness: The Key to Sickle Cell
The Key to Happiness November 11, 2017 The Key to Happiness Written by: crystalmccrory32 My son has a form of sickle cell anemia that has caused him great pain and suffering throughout his life. It often impedes his physical abilities, sidelining him for important events and milestones other children seamlessly enjoy. This past year has…
Read MoreSickle Cell Disease Handbook by APHON
Sickle Cell Disease Handbook for Patients & Families At this time, the Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. For one thing, The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook allows parents to review it with their…
Read MoreTips to Prevent Sickle Cell Crisis in the Summer
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Read MoreLife Insurance with Sickle Cell
It’s been very hard to obtain life insurance with sickle cell disease. Here are a few tips that may get your application approved.
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