Posts Tagged ‘Medications and Drugs’
SCW & GBT Livestream
10th Annual Sickle Cell Disease Therapeutics Conference September 15, 2021 9 am – 4 pm EST Visit the SCW Facebook page to join the GBT Livestream Sickle Cell Warriors, Inc. (SCW) and (Global Blood Therapeutics) GBT partner to host the annual Livestream of the 2021 Sickle Cell Disease Therapeutics Conference (SCDTC). Firstly, learn about the…
Read MoreNew data for Vertex and CRISPR Therapeutics
Vertex and CRISPR Therapeutics Present New Data in 22 Patients With Greater Than 3 Months Follow-Up Post-Treatment With Investigational CRISPR/Cas9 Gene-Editing Therapy, CTX001™ at European Hematology Association Annual Meeting – Beta thalassemia: All 15 patients were transfusion independent after CTX001 infusion – – Sickle cell disease: All seven patients were free of vaso-occlusive crises after…
Read MorePediatric Depression in SC
Depression and Kids with SCA Older age and higher education level showed increased scores. “A new study from Nigeria found that depression in young patients with sickle cell disease (SCD) was linked with increasing age and education level.” There is a new Nigerian study with teens and children who have sickle cell anemia (SCA). The…
Read MoreSurvey: Draft Fact Sheets on SCD Therapies
The Sickle Cell Disease Coalition (SCDC), is developing fact sheets on sickle cell disease (SCD) therapies for the community and would appreciate your help reviewing the draft resources. As background, the SCDC formed to amplify the voice of the SCD stakeholder community to improve outcomes for individuals with SCD and Sickle Cell Warriors, Inc. is a…
Read MoreRegister for SCDTC LiveStream
pre-register and watch the sickle cell disease therapeutics conference here live sickle cell disease awareness month warriors
Read MoreGBT Announces Updated 24-Week Efficacy Data
All Patients Enrolled in Phase 3 HOPE Study Showing Statistically Significant and Sustained Improvements in Hemoglobin with Voxelotor Global Blood Therapeutics, Inc. (GBT) today announced new results from its Phase 3 HOPE Study of voxelotor in patients ages 12 and older with sickle cell disease (SCD). The findings from 274 adolescents and adults treated with…
Read MoreRainy Lake Medical Center, International Falls, MN – Negative Review
Hello everyone, Patients all over the world struggling with sickle cell disease often go to the hospital when they are in a crisis and receive poor medical care from healthcare workers who have little to no knowledge of SCD. This has got to stop. In this section, we will be featuring real stories from sickle…
Read MoreSickle Cell and Endari
**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website. Hello everyone, great news! Endari is available as of December 17. Endari is a concentrated form of L-Glutamine. Its formuls is for sickle cell disease. When taken as directed, it has…
Read MoreSickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017
Sickle Cell Warriors has exclusively partnered with Global Blood Therapeutics (GBT) to livestream the Annual Sickle Cell Disease Therapeutics Conference. It will take place in New York City on September 14. You can view it with SCW at https://www.facebook.com/SickleCellWarriors/. This conference is the first to be entirely live streamed on our Facebook page. Through the…
Read MoreSickle Cell and Getting Prescriptions Filled
Have you ever had a doctor refuse to write you a script or a pharmacist refuse your prescription? James gives some tips on how to get your prescriptions ordered and filled, no matter what state you live in.
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