This week was a sad week for my family because after twenty years, I have decided to transfer to another hospital for the medical care for my 8 year old Sickle Cell warrior. Knowing that everyone on your child’s medical team has your family’s best interest is one of the
As parents of warriors, we must always be alert when managing our babies’ Sickle Cell disease. Recently, I had another eye-opening experience while dealing with doctors after my warrior temporarily lost her vision twice. The doctors immediately admitted her and gave her a blood transfusion. Next, they ran all kinds
Hello everyone! As you probably know, World Sickle Cell Day is around the corner on June 19th! This was established by the World Health Organization (WHO) and is celebrated all over the world. A few years ago, most of us didn’t know when it was, and if we did, we
In the last few weeks, several warriors have told me that they had other health problems besides sickle cell that was not addressed or diagnosed quickly by their physician because at first, the doctor chalked it up to being a ‘sickle cell’ complaint.
Our message at SCW is that you can still live a vibrant, amazing life with sickle cell disease. Here is a post from 40 year old Ty, a warrior who has learned to live well with sickle cell!
Ever thought you were ‘taking care of yourself’ but then ended up in crisis anyway? April sheds some insights on how to practice proper self-care.
Ever wondered what else you can do to improve your health, avoid sickle cell episodes, and generally feel better? Here are some basic tips to get you started–from one warrior to another.
Its cold, freezing, and snowing in most parts of the United States and North America right now. Here are some tips to keep you from going into crisis.
It’s so easy to sit back, complain, and expect things to change, but if we are not a part of the change, solution, and activism; then we are a part of the problem. Tamera eloquently addresses several issues plaguing the sickle cell community.
Wondering about scholarships for sickle cell patients? SC Mom Kristina did the research for you. Click here for a list of active scholarships for sickle cell students.
Pain meds can lead to constipation. Keep your bowels running smoothly with a few tips from other warriors just like you.
It’s been very hard to obtain life insurance with sickle cell disease. Here are a few tips that may get your application approved.
Have you ever wanted to get together with a group of Sickle Cell Warriors, your family, and friends on a vacation where you got to share your life experiences? Well then, this cruise is specifically designed just for you.
Ever thought of getting a tattoo but sickle cell has you a tad worried about it? Well then, this one is for you.
Tamara details the importance of screening all members of your healthcare team— especially your doctors. Tryouts and Probation is mandatory, not optional.