Sickle Cell Warriors

Tag "Living"

    Mary: The Story of a Warrrior Wife

Mary: The Story of a Warrrior Wife

I’m not a warrior but I’m a warrior wife, so I’ve spent time on the other side of your story. My story feels like it may have come from a Nigerian movie. I have known my husband for 21 years, we grew up as friends and neighbors. Everything was fine

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    Tracing sickle cell back to one child, 7,300 years ago

Tracing sickle cell back to one child, 7,300 years ago

Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The article contains videos and text that will provide a new perspective for how SCD developed and continues to influence the

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Free and Almost Free Ebooks by April Farrell-Hasty

If you have an e-reader or an iPad or tablet, then you want to get some free books! When I don’t feel well, sometimes all I do is read or study.  I have always loved to read, since I was a child. I have had an e-reader from almost the

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    Can Sickle Cell Patients Get Malaria? Yes, You Can!

Can Sickle Cell Patients Get Malaria? Yes, You Can!

Can a sickle cell warrior get malaria? There is a myth pervasive in the medical and sickle cell community that for some unknown reason sickle cell gives you immunity to malaria. This is NOT true! One of the worst childhood crisis I had was when I turned 12. It was

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    Life Insurance with Sickle Cell

Life Insurance with Sickle Cell

It’s been very hard to obtain life insurance with sickle cell disease. Here are a few tips that may get your application approved.

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    Stop Mistreatment of Sickle Cell Patients in the Emergency Room

Stop Mistreatment of Sickle Cell Patients in the Emergency Room

Question: G. Jones says, "What can we do to stop mistreatment of SCD patents in Hospital and being lable as Drug seekers. Like our pain is not real. We are not just looking for Dugs. Why wood anyone get out their bed and go to hospital at 3am, if their pain
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Who’s Really On Your Team?

This week was a sad week for my family because after twenty years, I have decided to transfer to another hospital for the medical care for my 8 year old Sickle Cell warrior.  Knowing that everyone on your child’s medical team has your family’s best interest is one of the

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    Don’t Be Bullied!

Don’t Be Bullied!

As parents of warriors, we must always be alert when managing our babies’ Sickle Cell disease.  Recently, I had another eye-opening experience while dealing with doctors after my warrior temporarily lost her vision twice.  The doctors immediately admitted her and gave her a blood transfusion.  Next, they ran all kinds

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    World Sickle Cell Day Activities!!!

World Sickle Cell Day Activities!!!

Hello everyone! As you probably know, World Sickle Cell Day is around the corner on June 19th! This was established by the World Health Organization (WHO) and is celebrated all over the world. A few years ago, most of us didn’t know when it was, and if we did, we

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    It’s NOT Always Sickle Cell

It’s NOT Always Sickle Cell

In the last few weeks, several warriors have told me that they had other health problems besides sickle cell that was not addressed or diagnosed quickly by their physician because at first, the doctor chalked it up to being a ‘sickle cell’ complaint.

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    Living Well with Sickle Cell, Without a Cure

Living Well with Sickle Cell, Without a Cure

Our message at SCW is that you can still live a vibrant, amazing life with sickle cell disease. Here is a post from 40 year old Ty, a warrior who has learned to live well with sickle cell!

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    Are You Practicing Proper Self Care?

Are You Practicing Proper Self Care?

Ever thought you were ‘taking care of yourself’ but then ended up in crisis anyway? April sheds some insights on how to practice proper self-care.

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    Stop The Pain Before It Starts!

Stop The Pain Before It Starts!

Ever wondered what else you can do to improve your health, avoid sickle cell episodes, and generally feel better? Here are some basic tips to get you started–from one warrior to another.

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    Brrrr! Bundle Up Warriors!

Brrrr! Bundle Up Warriors!

Its cold, freezing, and snowing in most parts of the United States and North America right now. Here are some tips to keep you from going into crisis.

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    Are You a Victim or Warrior?

Are You a Victim or Warrior?

It’s so easy to sit back, complain, and expect things to change, but if we are not a part of the change, solution, and activism; then we are a part of the problem. Tamera eloquently addresses several issues plaguing the sickle cell community.

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