Posts Tagged ‘Living with Sickle Cell’
SCW Video: Hallucinations and Sickle Cell
Have you ever had a crazy dream or hallucination while on pain meds? Sometimes our brain creates these alternate realities as an escape because the sickle cell pain is so unbearable in our current state. Has this ever happened to you? Share your story with us!
Read MoreSCW Video: Facebook and Health Activism
SCW Video: Why I’m a Health Activist
Livestream of FDA-ASH SCD Clinical Endpoints Workshop
Livestream of FDA-ASH SCD Clinical Endpoints Workshop October 17-18, 2018 The FDA-ASH Sickle Cell Disease (SCD) Clinical Endpoints Workshop aims to identify opportunities to bring uniformity and standards to existing SCD endpoints, identify gaps, and propose development of new endpoints as a focus for future research. Due to the high demand for this program, we…
Read MoreSCW Video: IVs, PICCs, Catheters and Ports
VOICE Crisis Alert App for SC
VOICE Crisis Alert App First national app created for patients and families with sickle cell disease The app stores all its data locally on your phone, so it’s private. In addition to being a crisis pain tracker tool storable for 90 days with an in-app pain diary to share with your health care provider and…
Read MoreGet the Match Livestream
Get the Match Livestream September 28 1 pm – 4 pm PST (8:00 pm – 11 pm GMT) There is a point in which all of us living with SCD will consider undergoing a bone marrow transplant to see if it can help our condition. Although there have been success stories, it’s important to educate…
Read MoreSCW Video: Don’t Call me a Sickler!
Don’t call me a sickler! Watch this video to learn why … and you can see more videos too. Hi this is your Sickle Cell Warrior. I finally decided to make a YouTube don’t call me a sickler video. There has been something on my mind. Someone left a message on my Facebook page and…
Read MoreThe SC Warrior Team is Expanding
Our team is expanding! Do you love to write? Are you a social media master? Do you create amazing graphic designs? Apply today to become part of the Sickle Cell Warrior’s team! The SCW Team is expanding to include: SOCIAL MEDIA CONTENT CREATORS We are looking for 7 social media content creators for our team…
Read MoreThe Sickle Cell Diet Video
Sickle Cell Diet Hey guys, I just lost an amazing seven pounds on the sickle cell diet plan! You didn’t know about the SC diet plan? Oh, my gosh, you have to try it. Like, it’s amazing. It’s the best. Any time you want to lose a little weight, first you have to make sure…
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