Posts Tagged ‘Living with Sickle Cell’
High Rates of Preterm Birth
How do we reduce this rate in our own communitites? @NICHQ
Read More6th Annual Sickle Cell Patient & Family Educational Symposium
July 24 – 28, 2019 Plano, TX The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created, and hosted by the sickle cell patient and family community. Each year the meeting is hosted by a partnership of sickle cell community-based organizations, patients, and advisors. We are…
Read MoreAddressing Health Disparities
How can we address health disparities in our own communities? What works and what doesn’t? @NICHQ
Read MoreSCW Video: Going With The Flow
Get Your “Sickle Cell Matters” T-Shirt
“Sickle Cell Matters” T-Shirt awareness raising/fundraising campaign Purchase your T-Shirt by clicking here! Wear it in support of World Sickle Cell Day on June 19th This link will only be live between April 17th and May 9th Cost: $22.00 plus shipping and handling (cost will vary based on size) Shirt will ship directly to you…
Read MoreComments on Practice Guidelines for SCD
The American Society of Hematology (ASH) is seeking comments on two additional draft clinical practice guidelines on sickle cell disease (SCD): pain and transplantation. All members of the public are invited to review the draft recommendations and submit comments, including physicians and researchers, allied professionals, industry and insurance company representatives, patients, caregivers, and general members…
Read MoreSCW Video: Fatigue
SCD Cure through Stem Cell Transplant
Exciting news!! Akshat Jain, MD, Director of Pediatric Hematology-Oncology at Loma Linda University Children’s Hospital and his team cures a Sickle Cell Disease patient through their first stem cell transplant. On behalf of Sickle Cell Warriors, a huge congratulations to Dr. Jain and his entire team! Click here to read the entire article.
Read MoreSickle Cell Phone Survey Opportunity for Patients and Caregivers!
This patient and caregiver survey seeks to understand the experience sickle cell patients have had with their disease as well as their interaction with the healthcare system. By learning more about your journey or that of your child, we hope to help inform how companies can develop novel products that would better serve sickle cell…
Read MoreWebinar “What’s New at SCDAA”
SCDC Sickle Cell Data Collection program Register for Webinar “What’s New at SCDAA” Wednesday, April 24, 2019 10:00 AM – 11:30 PM PST Register now: https://attendee.gotowebinar.com/register/1778776015181580301 Presented by Ms. Beverley Francis-Gibson, SCDAA President and CEO, and Dr. Biree Andemariam, SCDAA Chief Medical Officer. Tracking California’s Sickle Cell Data Collection for California program invites you to attend a webinar, “What’s New at the…
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