Living with Sickle Cell Archives - Page 2 of 10

A fallen Warrior rises as an Angel

Colin Alexander Ross was born in Mandeville Jamaica in August of 1961. We met in Boston after he immigrated to the United States in 1982 and married in 1987. He had been a successful DJ in Jamaica and won awards for dancing as well. Once he moved to the US, he took an accelerated course…

Digital Memorial Booklet

Be a part of a digital memorial booklet. Warriors, we have had our hearts broken. We have lost many amazing warrior friends, families, and brothers and sisters-in-blood. We wept, we suffered, we mourned, but we are not defeated. Still we rise. Join us and the entire sickle cell warrior family as we celebrate and honor…

Are You at Risk for Multiple Myeloma?

Multiple myeloma is a relatively rare cancer that develops in the bone marrow. As the cancerous plasma cells accumulate in the marrow, they crowd out other healthy blood cells. Unfortunately, the symptoms including bone pain, mental fogginess, excessive thirst may develop slowly over time and don’t usually appear until the disease reaches an advanced stage. In…

Black and Latina Women Focus on Self-Care

Stress due to the COVID-19 pandemic and the disproportionate impact the virus has had on their communities is compelling Black and Latina women who are 50 and older to place a renewed emphasis on inner health, self-care and well-being, according to a new AARP national survey. “Mirror/Mirror: Women’s Reflections on Beauty, Age, and Media,” an AARP survey of…

Pediatric Depression in SC

Depression and Kids with SCA Older age and higher education level showed increased scores. “A new study from Nigeria found that depression in young patients with sickle cell disease (SCD) was linked with increasing age and education level.” There is a new Nigerian study with teens and children who have sickle cell anemia (SCA). The…

Black Health Matters Initiative

The COVID pandemic has impacted the globe. It has also brought to the forefront the fact that people of color have more enormous challenges to receiving health care. These glaring disparities in health care are the most significant cause of death in black and brown people. Despite the Institute of Medicine’s report in 2003 stating that minorities…

Advertise Here!

Hello Sickle Cell Community Stakeholders! Get your message to a wider audience! Share news about your research, scholarship, event, gig, organization, or business! Start here! The Sickle Cell Warriors ~ League of Sponsors is looking for new partners! The League of Sponsors helps fund sickle cell-focused programs for patients and families living with sickle cell…

SC Warrior Death due to Hospital Negligence

Sickle Cell Warrior Death Inquest Reveals Gross Negligence in Hospital This makes me so mad. Rest Pain-free Mr. Evan Smith, Your death will not be in vain, you will save many warriors, I promise. Shame on you North Middlesex Hospital. All their excuses don’t matter. This young man lost his life due to poor medical…

Pre-Registration for LiveStream

Click here to register and watch the sickle cell disease therapeutics conference. Watch live here on Tuesday; sickle cell disease awareness month is for warriors, it’s our time to shine!

Mental Health Initiative for Sickle Cell Warriors, Inc.

Register here for the new Mental Health Initiative, a free benefit provided by the Sickle Cell Warriors, Inc., community. The program details are below. This program is for warriors, by warriors, to warriors and funded with donations from the SCW community.