Sickle Cell Warriors

Tag "Crises and Pain"

The Sickle Cell Drug Addicts

I’m a nurse in a NYC public hospital and we have a cohort of patients w/SC who I see in the ED at least everyday or every other day. The hospital has a SC clinic but when it closes the patients come to the ED. They don’t have to wait

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What the Pain Feels Like

This is one of my absolute favorite PSA’s about sickle cell. Elise is totally kick ass, a warrior of the highest grade and I adore her accent. Her she talks about the pain that we sickle cell warriors go through. If you want to watch the whole series, click HERE

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Crises #2: What Happened

Dates: May 9-17. After spending Thursday night fighting cold and flu symptoms, Friday morning had me dealing with pain…in a major way. None of the trifecta of painkillers, (Oxycodone, Vicodin and Dilaudid) could help me, even when I majorly dosed up on the trifecta. This means that the pain was

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Crises #2 of 2008: The Triggers

First of all, let’s focus on the triggers: The Trip to Hawaii: I was sick on this trip but not a major crises zone. More like “I’m warding off a major crises with rest and meds, please God don’t let me get majorly sick!” I did get better towards the

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Back Again

Well, the last week has been rough to say the least. I’m going to explore the triggers of my last crises as I usually do in my next post, but this one was really, really awful. The last time I was sick, I thought it was my worst time ever…but

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Avascular Necrosis

I’m worried about my hips. I’ve been reading lately about avascular necrosis of the hip and the more I read about it, the more I think I have it. From what I understand, the sickling of cells causes the blocking off of tiny cappillaries, arterioles and venuoles (a sickle cell

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Admitting I’m Not a Super Woman

I was at work last night, another late 12 hour nocturnal shift. Everything was going okay until around 4am when I got hit by major pains. It’s unethical to be popping pain pills when I have the lives of other people in my hands so I just gritted my teeth

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Going to the ER with Sickle Cell

For some reason, the medical profession, especially in the US has a limited view of sickle cell. First of all, they think that people with the trait can’t have pain—THAT IS A MYTH! Just because they don’t have the full out disease, doesn’t mean that pain doesn’t exist in the

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Back From Another Crises

First of all, I will update the ticker. Now it’s only been a 5 days since my last admission, bummer—what a way to start the year. But I’m not going to gripe about it, such is the lot in my life. Everyone has their burden to bear. Last year I

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Crises #1 of 2008: Triggers

Okay, so I’m trying to think about everything that contributed to this last crises, so that I can do better with the ‘taking care of myself’ part and prevent another one from happening. Working Overtime: Overtime pay rocks, but the OT on my body was a bad call. I thought

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Sickle Cell & Cold

Today I was asked a question by a friend, “Which do you like better, hot or cold?” My answer was a vehement HOT! Not just because it’s so miserable being cold but mainly because when I’m cold for a period of time (like more than 20 minutes), I put myself

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Double Whammy

I’d been skating on thin ice for weeks, dealing with daily pain and my eyes were definitely juandiced. I knew I was about to fall sick, the question was when. 2 weeks ago, I was thrown into a crushing series of L3’s uncontrolled by meds. This hit me right after

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Here We Go Again

Just when I started thinking I was going to be doing great for a while.Just when I started getting into the groove of this exercising thing.Just when I started taking Pro-Arginine and feeling great.Just when I started getting used to my hours at work. Just when my life starts getting

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Trepidation

I have this weird feeling in my leg. It first started in my thigh, like a tight muscle. I had Norio massaging it last night with some relief but I could still feel a knot there. Today the next symptom was tingling. It’s on the same leg but the tingling

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Hola!

I’m here, present and accounted for. Norio and I were both laid out in pain yesterday, he threw his back out playing tennis, and I was hurting L2s per usual. I wanted to get him some Motrin but I could barely move. Good thing I keep a stash of painkillers

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