Sickle Cell Warriors

Tag "Crises and Pain"

    Public Meeting for Patient-Focused Drug Development on Chronic Pain

Public Meeting for Patient-Focused Drug Development on Chronic Pain

Public Meeting for Patient-Focused Drug Development on Chronic Pain Meeting Information On July 9, 2018, FDA is hosting a public meeting on Patient-Focused Drug Development for Chronic Pain. FDA is interested in hearing patients’ perspectives on chronic pain, views on treatment approaches, and challenges or barriers to accessing treatments for

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    How Do You Still Believe in a Loving God?

How Do You Still Believe in a Loving God?

Ever wondered why God allows you to have sickle cell pain? Well you are not alone.

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    Rainy Lake Medical Center, International Falls, MN – Negative Review

Rainy Lake Medical Center, International Falls, MN – Negative Review

Hello everyone, Patients all over the world struggling with sickle cell disease often go to the hospital when they are in a crisis and receive poor medical care from healthcare workers who have little to no knowledge of SCD. This has got to stop. In this section, we will be

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    Sickle Cell and Endari

Sickle Cell and Endari

**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website. Hello everyone, great news! Endari is available as of December 17. Endari is a concentrated form of L-Glutamine specially formulated for sickle cell disease. When taken

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    Avascular Necrosis, Hip Replacements and Sickle Cell

Avascular Necrosis, Hip Replacements and Sickle Cell

What to do with AVN when you are young? See the message below! I am young (in my early 20s) and I had a hip replacement one and a half years ago. I had AVN in my left hip which progressively got worse over the course of 8 years to

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    Tips to Prevent Sickle Cell Crisis in the Summer

Tips to Prevent Sickle Cell Crisis in the Summer

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    Stop Mistreatment of Sickle Cell Patients in the Emergency Room

Stop Mistreatment of Sickle Cell Patients in the Emergency Room

Question: G. Jones says, "What can we do to stop mistreatment of SCD patents in Hospital and being lable as Drug seekers. Like our pain is not real. We are not just looking for Dugs. Why wood anyone get out their bed and go to hospital at 3am, if their pain
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    Research Study Request: Chronic Pain in Sickle Cell Disease

Research Study Request: Chronic Pain in Sickle Cell Disease

From time to time, we get requests from researchers who would like members of the sickle cell community to participate in various types of research. This inquiry has been pre-screened, and your info will be kept confidential and private. Please use your own judgement, and only proceed if you fee

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    Yoga and Sickle Cell

Yoga and Sickle Cell

Read about April’s journey from becoming a yoga student to a yoga master, and a teacher’s teacher.

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    Should You Use Marijuana for Sickle Cell?

Should You Use Marijuana for Sickle Cell?

If you were considering using marijuana for sickle cell, here are a few things to think about.

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    Pack it Up!

Pack it Up!

The Boy Scout motto is Be Prepared. As a Sickle Cell Warrior or Caregiver, you too must always be prepared. Get ready for a crisis with your bags packed

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    Stop The Pain Before It Starts!

Stop The Pain Before It Starts!

Ever wondered what else you can do to improve your health, avoid sickle cell episodes, and generally feel better? Here are some basic tips to get you started–from one warrior to another.

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    Learn Your SCW’s Body for Yourself

Learn Your SCW’s Body for Yourself

Learning your child’s body can be a daunting task, especially with sickle cell. ElleJ shares her strategies with you, from one warrior mom to another.

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    Sickle Cell and Getting Prescriptions Filled

Sickle Cell and Getting Prescriptions Filled

Have you ever had a doctor refuse to write you a script or a pharmacist refuse your prescription? James gives some tips on how to get your prescriptions ordered and filled, no matter what state you live in.

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    For Parents: Overcoming the Fear of Sickle Cell

For Parents: Overcoming the Fear of Sickle Cell

Don’t give in to fear, fight every battle as if your warrior’s life depends on it!

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