This week's warrior is Jazzlind. She's a 15 year old full of spice and life, and she has candidly opened up about her experiences with sickle cell.
Ever wondered if you could be a working model in NY with sickle cell? If Akimie can do it, so can you!
Tosin explains how you can have a successful and happy life with sickle cell. Once we shift our mentality, we all can achieve all our goals and dreams.
The creator of the Heart of Gold foundation shares her inspirational journey with sickle cell below. Read on...
Meet Kandis, an intrepid and determined young lady. Even with AVN and sickle cell, she has accomplished all her dreams and strives to inspire others.
Hello everyone, It’s been a few months since I posted on here. First of all I need to apologize for the silence. I know that it may have been very frustrating to come here with no new updates. Since October, I’ve faced alot of challenges [continue reading...]
For those of you who haven't zeroed in on your purpose in life, this is a great exercise when you have the time. Often we have 'mental lists', but an actual physical list gives you something concrete, something that you can check off, and something [continue reading...]
For many of us with sickle cell, going to the emergency room is one of the worst parts of having the disease. Here are a few tips to help you make the ER visit less stressful and more successful. Good luck! [continue reading...]
Story of my first crises. A lovely family day at the beach, went awry with sickle cell…and so it began. Share your sickle cell first crises story in the comments section. [continue reading...]
Have you ever wondered what the nurses are saying in the nurses' station about you as a sickle cell patient? Well, wonder no further...Proceed at your own risk. [continue reading...]
How do you deal when a friend or family member is going through a crises? Check the video to find out more. [continue reading...]
Meet Elise: a beautiful, eloquent SCD warrior bravely sharing her story of the struggles of dealing with sickle cell. [continue reading...]
I was wondering if anyone else has pain right before their period starts or during. I never was a woman to get cramps or migraines but i do get pains in my left knee right before my period starts. Lately I’ve been also feeling drowsy and drained. I have said on here several times that [continue reading...]
I’m sure many sickle cell warriors can relate to having near death experiences. I’ve been deathly ill a quite a number of times, but out of those numerous admissions, only once can I quantify as being near death. The first was in 1993. I had Malaria, Cholera and Pneumonia when I was 13 in Nigeria. [continue reading...]
As a transcontinental transplant, I experienced alot of dramatic changes in how I was treated as a sickle cell patient in Nigeria vs my treatment in America. Those of you who have read the archives know that although I was born in Nigeria, I only lived there from birth to 4 years old, and then [continue reading...]
There is a great discussion over at the Ning Sickle cell board over coping when you are in the hospital in pain and doctors don’t believe your pain and ask you what your doses of pain meds are, and when you tell them, they respond “Oh that’s too high, that can’t be right, I’m only [continue reading...]
Hello darlings, In the interest of full disclosure, I must state that I had pain this week. I actually had to call off of work on April 1st. The pains started as they normally did, twinges here and there, L1s, nothing major, and I ignored them, thinking it was a fluke and would just go [continue reading...]
SCD Soldier Network
Sickle Cell advocacy and empowerment organization. Join now!
Very Bright Foundation