Sickle Cell Warriors

Tag "Advocacy and Activism"

    7th Annual Sickle Cell Disease Therapeutics Conference

7th Annual Sickle Cell Disease Therapeutics Conference

The 7th Sickle Cell Disease Therapeutics Conference is a forum to discover the latest advancements and future trends impacting the sickle cell community.  Conference attendees will hear from innovative industry leaders, patients, physicians, community based organizations and biotech companies. For more information about the conference, email scdconference@gmail.com Registration is required. Click

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    2018 SCD Seminar & Hotel Registration

2018 SCD Seminar & Hotel Registration

Reserve Your Hotel Room Today! All SCD Warriors who register before August 15th are guaranteed a bed at the fabulous Courtyard by Marriott! That means, for $25 the SCD Warrior gets: A bus ride to Sacramento from one of 5 routes To stay four nights at one of the best

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    S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018

S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018

S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018 In February 2018, the sickle cell community celebrated with the announcement of two legislative victories in Congress. First, the U.S. House of Representatives passed H.R. 2410 on February 26, 2018, the Sickle Cell Disease Research, Surveillance, Prevention, and

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    Sickle Cell Patient & Family Educational Symposium

Sickle Cell Patient & Family Educational Symposium

The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created and hosted by the sickle cell patient and family community.  Now in its fifth year, the meeting has grown in size and scope. Each year the meeting is hosted by a

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    World Sickle Cell Day 2018

World Sickle Cell Day 2018

Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and awareness of sickle cell disease on a global scale. For us warriors, it is like your sickle cell birthday!!! We

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    Tomorrow, June 19, is World Sickle Cell Day!

Tomorrow, June 19, is World Sickle Cell Day!

On World Sickle Cell Day, Sickle Cell Warriors Takes Action to Improve Global Health Outcomes Sickle Cell Warriors, with the American Society of Hematology and other Sickle Cell Disease Coalition partners, debuts a public service announcement and global resources library to help improve newborn screening and early care for children

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    It’s Your #SickleCell Birthday!!!

It’s Your #SickleCell Birthday!!!

Did you know that your #SickleCell Birthday is around the corner? SCW shares her personalized letter to friends.

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June 19th is World Sickle Cell Day!

What are your plans to celebrate World Sickle Cell Day? I hope you have some…if not…get some!

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    Public Meeting for Patient-Focused Drug Development on Chronic Pain

Public Meeting for Patient-Focused Drug Development on Chronic Pain

Public Meeting for Patient-Focused Drug Development on Chronic Pain Meeting Information On July 9, 2018, FDA is hosting a public meeting on Patient-Focused Drug Development for Chronic Pain. FDA is interested in hearing patients’ perspectives on chronic pain, views on treatment approaches, and challenges or barriers to accessing treatments for

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    5th Annual Lowcountry Sickle Cell Disease Symposium

5th Annual Lowcountry Sickle Cell Disease Symposium

5th Annual Lowcountry Sickle Cell Disease Symposium Therapeutic Options in Sickle Cell Disease Saturday, April 28, 2018 MUSC Drug Discovery Building 97 Jonathan Lucas Street Charleston, SC   Conference Description Sickle Cell Disease is the most common inherited blood disorder. Due to improvements in childhood care, many more patients are living

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    Registration Open for Sickle Cell Patient & Family Convention 2018

Registration Open for Sickle Cell Patient & Family Convention 2018

Hello Warrior Family, Registration is now open for the 2018 Annual Sickle Cell Patient & Family Educational Symposium. To learn more visit www.sicklecellconvention.com. This is the same one that we have done for the past 3 years. It will be in Los Angeles, CA from July 28-31. Hope to see

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    Rainy Lake Medical Center, International Falls, MN – Negative Review

Rainy Lake Medical Center, International Falls, MN – Negative Review

Hello everyone, Patients all over the world struggling with sickle cell disease often go to the hospital when they are in a crisis and receive poor medical care from healthcare workers who have little to no knowledge of SCD. This has got to stop. In this section, we will be

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    Sickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017

Sickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017

Sickle Cell Warriors has exclusively partnered with Global Blood Therapeutics (GBT) to livestream the Annual Sickle Cell Disease Therapeutics Conference from New York City on September 14 at https://www.facebook.com/SickleCellWarriors/. This is the first conference that will be live streamed on our Facebook page in its entirety Through the livestream, you will

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    Stop Mistreatment of Sickle Cell Patients in the Emergency Room

Stop Mistreatment of Sickle Cell Patients in the Emergency Room

Question: G. Jones says, "What can we do to stop mistreatment of SCD patents in Hospital and being lable as Drug seekers. Like our pain is not real. We are not just looking for Dugs. Why wood anyone get out their bed and go to hospital at 3am, if their pain
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    You Can Make a Difference!

You Can Make a Difference!

Hello everyone! Sickle Cell Warriors, we often hear complaints that there is not enough being done for Sickle Cell Disease. I’m extremely disappointed to find out that out of over 100,000 people with SCD in the US and millions abroad, only a few have completed this survey. How can we

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