Sickle Cell Warriors

Tag "Advocacy and Activism"

    You Can Make a Difference!

You Can Make a Difference!

Hello everyone! Sickle Cell Warriors, we often hear complaints that there is not enough being done for Sickle Cell Disease. I’m extremely disappointed to find out that out of over 100,000 people with SCD in the US and millions abroad, only a few have completed this survey. How can we

1 comment Read Full Article
    New Warrior Channel: Lady Bunkumi & Sickle Cell

New Warrior Channel: Lady Bunkumi & Sickle Cell

1 comment Read Full Article

Get Well Wednesday: RN Tosin Ola Answers Your Sickle Cell Questions

Hey Warrior Fam, Check out our Founder, Tosin Ola’s interview with the Tom Joyner radio show. Repping for Sickle Cell all the time. Awareness is integral and we all must do our part. Tosin Ola, BSN, RN knows firsthand the challenges of living with sickle-cell disease. The practicing registered nurse,

1 comment Read Full Article
    Sickle Cell Action Network at 1pm PST Tuesdays

Sickle Cell Action Network at 1pm PST Tuesdays

Here is another excellent  resource dedicated to sickle cell disease. Gary Gibson, President of the Martin Center Sickle Cell Initiative has been hosting this amazing show for the last few months. Tune in every Tuesday, 1pm PST/4pm EST to get your latest news and happenings in the sickle cell community,

0 comment Read Full Article
    Sickle Cell Warrior Heather on Dr. Phil Show

Sickle Cell Warrior Heather on Dr. Phil Show

One of our esteemed Warriors in the Spotlight, Heather Avant was featured on the Dr. Phil show on December 17, 2015. She talks about how it is to live with sickle cell disease, what the pain feels like, going through a VOC, and the stigma that we often face living with

0 comment Read Full Article
    Bi-Annual Update of Sickle Cell Warriors™

Bi-Annual Update of Sickle Cell Warriors™

Hello Warrior Family! This letter is a year late but I finally finished it. Apologies for the delay. Read on and you will see why… It’s been a while since I last penned an article on here. Thank you so much to everyone that has emailed, texted, called, and posted

2 comments Read Full Article
    World Sickle Cell Day Activities!!!

World Sickle Cell Day Activities!!!

Hello everyone! As you probably know, World Sickle Cell Day is around the corner on June 19th! This was established by the World Health Organization (WHO) and is celebrated all over the world. A few years ago, most of us didn’t know when it was, and if we did, we

1 comment Read Full Article

Know Who You Are!

Know Who You Are! Greeting to All, it’s been a minute, my SC parents! My warrior has been continuously sick since my last article posting and hence my writing had slowed! But God has blessed me with my second wind and inspired me to write for all my SC parents

4 comments Read Full Article
    Help Sickle Cell Obtain the Rare Disease Pediatric Voucher

Help Sickle Cell Obtain the Rare Disease Pediatric Voucher

Sickle Cell Warriors!!! We need your help!  Please read the letter below and  send your comment into the FDA. We have until February 16th to respond as a community. The deadline is coming up quick! The Pediatric Rare Disease Voucher Program was created for sickle cell disease, however, due to

0 comment Read Full Article
    SC Gathering & Educational Symposium Appreciation

SC Gathering & Educational Symposium Appreciation

WOOHOO!!!! We made it! The 2014 Sickle Cell Warriors Gathering is now officially over! Thank you so much for everyone who has attended and made this experience phenomenal. Lakiea & I hope that you found it extremely informative, educational, inspiring, and supportive. There are so many people to thank, so

4 comments Read Full Article
    Sickle Cell Families Need Direct Support Services

Sickle Cell Families Need Direct Support Services

Being the parents of a Sickle Cell Warrior (SCW), we know giving up is never an option. Even when we don’t receive the needed support to get through each crisis, we can never lose hope or our smile. Your child survives merely through the pain from your strength/smile. But who

3 comments Read Full Article
    Program for the SCW Gathering & Educational Symposium July 17-20

Program for the SCW Gathering & Educational Symposium July 17-20

2014 Sickle Cell Community Gathering & Education Symposium PROGRAM AGENDA Please note that this schedule is a guideline, but times/rooms/and sessions are not set in stone. Announcements will be made if there are any changes. Always bring your journal or notebook with you. THURSDAY, JULY 17TH   8:00PM – 9:00PM       

0 comment Read Full Article
    All About the Sickle Cell Gathering

All About the Sickle Cell Gathering

Hey Warrior Family! We hope you are doing well. Sickle Cell Warriors, Inc. is planning the 2nd Annual Sickle Cell Community Gathering and Educational Symposium. This year it is in Atlanta, GA from July 17-20, 2014 at the DoubleTree by Hilton Hotel in Buckhead. We are delighted to invite you

0 comment Read Full Article
    Guidelines for the Day of Prayer #SickleCell50

Guidelines for the Day of Prayer #SickleCell50

Here are the Prayer & Meditation Guidelines for the first ever 50 Hour International Day of Prayer for Sickle Cell Disease #SickleCell50

0 comment Read Full Article
    April Sickle Cell Warriors International Day of Prayer & Meditation for Sickle Cell Disease

April Sickle Cell Warriors International Day of Prayer & Meditation for Sickle Cell Disease

It’s been a long time coming, but here is our first international challenge that focuses how we can change the world—together.

0 comment Read Full Article

Donate

Support awareness & education for SCD

Announcements

Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

Join the Sickle Cell Warriors Database

Become a warrior. Sign up to be a team leader/member. Get contacted directly by SCW about events and research in your area. YOUR INFORMATION WILL NOT BE SHARED/SOLD TO ANY THIRD PARTIES. (See privacy policy)
Example SS, SC, Beta Thal, Monroe, etc.
You will receive pre-screened research opportunities on sickle cell disease
You will receive info about the sessions on the advocacy training classes
Read more here: http://sicklecellwarriors.com/classes/
* = required field
Interested in local meetups?




powered by MailChimp!

Join us on Facebook!

Archives

Tweets!

have data = false

This is a demo store for testing purposes — no orders shall be fulfilled.