Posts Tagged ‘Advocacy and Activism’
Black History Month Midwives 2022
Did You Know: Black Midwives Most midwives, including enslaved women, drew upon traditional healing knowledge and practices passed down through generations. Throughout the years, despite efforts to marginalize them by the medical establishment, Black midwives have continued to play a critical role in delivering babies and training the next generation of Black birthworkers. This #BlackHistoryMonth…
Read MoreBlack History Month Celebrate 2022
February is Black History Month – a time to honor the incredible contributions African-Americans have made to this country throughout its history. In celebration of this year’s official theme, Black Health and Wellness, we join #NICHQ in uplifting and building on the incredible work of Black scholars and medical practitioners in Western medicine, as well…
Read MorePublic Meeting: FDA Rare Disease Day 2022
FDA will host a virtual public meeting on March 4, 2022, 9:00 am to 4:30 pm EST, to join the global observance of Rare Disease Day. The theme for FDA’s Rare Disease Day is “Sharing Experiences in Rare Diseases Together.” During the meeting, various stakeholders will share their perspectives on and experiences in rare disease product development. Please visit the public meeting page to register for the event. If you are a…
Read MoreBlack History Month Mothers & Children 2022
The Impact of Institutional Racism on Maternal and Child Health Understanding the history associated with the persistent health disparities impacting the Black community is a vital step toward dismantling policies and practices that continue to adversely affect Black maternal and child health outcomes. Institutional racism—racism that began with the enslavement of Black people—was embedded in…
Read MoreBlood Drive Opportunity!
Sickle Cell Anemia Awareness (SCAASF) is a nonprofit organization with a focus to bring about a greater awareness of sickle cell disease, advocate for improved healthcare and educate to empower those individuals living with sickle cell disease. Sickle Cell Disease (SCD) is a blood disorder that requires individuals to receive transfusion and blood exchanges on…
Read MoreFamily Therapy offered for Families in FL through SCW
SCW is facilitating family therapy for families in Florida affected by SCD. Starting in November, meet online with a licensed psychotherapist specializing in Marriage & Family Counseling for 7 weeks in the convenience of your own home. By signing up, you will receive 7 weeks of personalized family therapy sessions for $100 per family. Sessions…
Read MoreSCW & GBT Livestream
10th Annual Sickle Cell Disease Therapeutics Conference September 15, 2021 9 am – 4 pm EST Visit the SCW Facebook page to join the GBT Livestream Sickle Cell Warriors, Inc. (SCW) and (Global Blood Therapeutics) GBT partner to host the annual Livestream of the 2021 Sickle Cell Disease Therapeutics Conference (SCDTC). Firstly, learn about the…
Read MoreASGCT Advocacy Update
Newborn Screening Advocacy Succeeds in Georgia Earlier this month, Georgia Governor Brian Kemp signed HB 567 [ https://www.legis.ga.gov/legislation/59896 ] into law, which will require the state to consider new federal newborn screening (NBS) recommendations within one year, implement them within two and a half years, and provide appropriate funding for the NBS program. ASGCT supported the bill…
Read MoreBlack Health Matters Initiative
The COVID pandemic has impacted the globe. It has also brought to the forefront the fact that people of color have more enormous challenges to receiving health care. These glaring disparities in health care are the most significant cause of death in black and brown people. Despite the Institute of Medicine’s report in 2003 stating that minorities…
Read MoreAdvertise Here!
Hello Sickle Cell Community Stakeholders! Get your message to a wider audience! Share news about your research, scholarship, event, gig, organization, or business! Start here! The Sickle Cell Warriors ~ League of Sponsors is looking for new partners! The League of Sponsors helps fund sickle cell-focused programs for patients and families living with sickle cell…
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