Home Tags Advocacy and Activism

Tag: Advocacy and Activism

World Sickle Cell Day is June 19th

June 19th is World Sickle Cell Day! Celebrated all over the world. Join us

FDA Public Meeting – Patient Perspectives on the Impact of Rare...

Registration Open: FDA Public Meeting - Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities On Rare Disease Day, FDA announced the Agency will host...

Show Your Rare!

The #ShowYourRare campaign was launched in 2018. The campaign has inspired the Rare Disease Day 2019 poster and videos. Rare diseases affect an estimated 300 million people around the...

Rare Disease Day Countdown!

Hello warriors! We have just over a week until February 28th, which is Rare Disease Day! In the US, a rare disease is defined as...

About us

Sickle Cell Warriors, Inc. is a non-profit charitable organization dedicated to elevating education, empowerment, advocacy, and awareness about sickle cell disease. Our mission is...

7th Annual Sickle Cell Disease Therapeutics Conference

The 7th Sickle Cell Disease Therapeutics Conference is a forum to discover the latest advancements and future trends impacting the sickle cell community.  Conference...

2018 SCD Seminar & Hotel Registration

Reserve Your Hotel Room Today! All SCD Warriors who register before August 15th are guaranteed a bed at the fabulous Courtyard by Marriott! That means,...

S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act...

S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018 In February 2018, the sickle cell community celebrated with the announcement of...

Sickle Cell Patient & Family Educational Symposium

The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created and hosted by the sickle...

World Sickle Cell Day 2018

Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009...
- Advertisement -

MOST POPULAR