Sickle Cell Warriors

Articles

 Breaking News

Stem Cell Questionaire

Hey everyone, we have been asked to involve the community in a research sampling. We just need a few participants to answer the questions below, and email it back to us. We will then forward to the researcher. Please email tosin@sicklecellwarriors.com with the answers. Try to use the same format, and just include your answers.  Thanks

Questionnaire on the use of stem cells to treat sickle cell anaemia

 

This questionnaire will contribute to an EPQ qualification, which is a research project done in the sixth form. The results will be kept confidential and only used for the purpose of the project. Participants have the right to withdraw at any time.

 

Age: ………….              Gender: ………………..

 

  1. What treatment have you had so far to treat sickle cell anaemia?

Please tick.

 

Medication  
Gene therapy  
Bone marrow transplant  

 

 

 

If other, please specify …………………………………………………………………………

 

  1. Have you, or anyone you know, had stem cell treatment to treat sickle cell anaemia? This could be using bone marrow, placenta, umbilical cord or any other source of stem cells. Please circle or delete appropriately.

 

Yes                        No

 

If yes, how old were you/they when the treatment was done? ………….

 

From what source where the stem cells (bone marrow, umbilical, etc)?

…………………………………………………………………………………………………

 

Do you/they feel the stem cell treatment was successful? Please circle or delete appropriately.

 

Yes                             Partially                  No

 

Why? ………………………………………………………………………………………………………………………………………………………………………………………………………………….

 

 

  1. How well informed do you feel about the use of stem cell treatment to treat sickle cell anaemia? Please circle or delete appropriately.

 

Very well            Well              Okay            Not well        Not informed

 

 

 

  1. Would you consider having stem cell treatment yourself? Please circle or delete appropriately.

 

Yes                             Not sure                 No

 

Why? ………………………………………………………………………………………………………………………………………………………………………………………………………………….

 

  1. Please indicate whether you have read, seen or heard anything about these new treatments that are currently being trailed to treat sickle cell anaemia.
Treatment Yes/No
Partial bone marrow transplant for adults  
Using stem cells from the umbilical cord  
Using stem cells from the placenta  
Using induced pluripotent stem cells  

 

  1. In your opinion, could any of these new treatments have the potential to successfully cure sickle cell anaemia in the future? If so, which ones and why?

 

…………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………

Related posts:

Tags
Share

About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin’s message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

Related Articles

1 Comment

  1. Zul
    Zul January 07, 21:33

    The stem cell questionnaire is a very good idea!please do give us a feed back on the results it will help alot!!Good work keep iot up!

Write a Comment

Donate

Support awareness & education for SCD

Announcements

Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

Join the Sickle Cell Warriors Database

Become a warrior. Sign up to be a team leader/member. Get contacted directly by SCW about events and research in your area. YOUR INFORMATION WILL NOT BE SHARED/SOLD TO ANY THIRD PARTIES. (See privacy policy)
Example SS, SC, Beta Thal, Monroe, etc.
You will receive pre-screened research opportunities on sickle cell disease
You will receive info about the sessions on the advocacy training classes
Read more here: http://sicklecellwarriors.com/classes/
* = required field
Interested in local meetups?




powered by MailChimp!

Join us on Facebook!

Archives

Tweets!

have data = false

This is a demo store for testing purposes — no orders shall be fulfilled. Dismiss