Stem Cell Questionaire

Hey everyone, we have been asked to involve the community in a research sampling. We just need a few participants to answer the questions below, and email it back to us. We will then forward to the researcher. Please email tosin@sicklecellwarriors.com with the answers. Try to use the same format, and just include your answers.  Thanks

Questionnaire on the use of stem cells to treat sickle cell anaemia

 

This questionnaire will contribute to an EPQ qualification, which is a research project done in the sixth form. The results will be kept confidential and only used for the purpose of the project. Participants have the right to withdraw at any time.

 

Age: ………….              Gender: ………………..

 

  1. What treatment have you had so far to treat sickle cell anaemia?

Please tick.

 

Medication  
Gene therapy  
Bone marrow transplant  

 

 

 

If other, please specify …………………………………………………………………………

 

  1. Have you, or anyone you know, had stem cell treatment to treat sickle cell anaemia? This could be using bone marrow, placenta, umbilical cord or any other source of stem cells. Please circle or delete appropriately.

 

Yes                        No

 

If yes, how old were you/they when the treatment was done? ………….

 

From what source where the stem cells (bone marrow, umbilical, etc)?

…………………………………………………………………………………………………

 

Do you/they feel the stem cell treatment was successful? Please circle or delete appropriately.

 

Yes                             Partially                  No

 

Why? ………………………………………………………………………………………………………………………………………………………………………………………………………………….

 

 

  1. How well informed do you feel about the use of stem cell treatment to treat sickle cell anaemia? Please circle or delete appropriately.

 

Very well            Well              Okay            Not well        Not informed

 

 

 

  1. Would you consider having stem cell treatment yourself? Please circle or delete appropriately.

 

Yes                             Not sure                 No

 

Why? ………………………………………………………………………………………………………………………………………………………………………………………………………………….

 

  1. Please indicate whether you have read, seen or heard anything about these new treatments that are currently being trailed to treat sickle cell anaemia.
Treatment Yes/No
Partial bone marrow transplant for adults  
Using stem cells from the umbilical cord  
Using stem cells from the placenta  
Using induced pluripotent stem cells  

 

  1. In your opinion, could any of these new treatments have the potential to successfully cure sickle cell anaemia in the future? If so, which ones and why?

 

…………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………………

SC Warrior

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