A friend on the Ning Sickle Cell forum is working with doctors at Johns Hopkins to develop training for medical students on sickle cell treatment & care. They want to know what issues we’re having with health care treatment.
This is our chance to get on the soapbox and let our voices be heard. So please either respond via comments or send me an email answering the following questions:
(1) What issues are you having with self-management at home?
(2) With health care providers? (doctors, nurses, clinics)?
(3) With pain medication (or lack of proper medication)?
(4) Anything else that pisses you off about healthcare treatment of people with SCD.
Doctor’s are listening and now it’s your chance to tell them your thoughts.
Let’s do it!