Sickle Cell Disease Handbook for Patients & Families
The Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. The Sickle Cell Disease Handbook provides an overview for patients and their families on SCD. Each handbook is written at the 6th grade level allowing parents to review it with their children.
This is a free resource provided by APHON for parents, warriors, and families dealing with sickle cell disease. You can read and download the handbook below.