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Sex With Sickle Cell

I’m a very sexual person, so this has been one of the harder things to deal with about sickle cell. It sucks that when you are in the throes of a passionate encounter, you have a greater chance of getting and L2 or higher or even get thrown into a full blown out crises.

Here’s the deal, with sex, your heart pumps blood faster through all the veins. Faster blood pumping means that any sickle cells that have been chilling in the corners somewhere causing no problems get flushed into the main bloodstream then smaller blood vessels and start to do their clogging up shit. Other factors include the fact that you are most probably hyperventilating during sex and this drops your oxygen saturation level making your body respond by pumping faster and faster. In addition, you are dehydrating via perspiration and cum so you need to hydrate before and after coitus.

I’ve had numerous exacerbations after sex. Sometimes even right in the middle, picture this, one minute you are having your orgasmic experience and the next minute are huddling under the covers, cold as fuck, joints hurting and pain coursing through your body like crazy. It’s like going from 100 mph to 0 in less than 30 seconds. Can you imagine how your lover must be freaking out?

The best recourse is just to stop immediately, I know some people might argue to fight through the pain and just keep having sex…but check this fool, you’re not the one in pain! So until you feel like a thousand jackhammers are crushing your bones mid-coitus, you have no right to try to talk me into ‘keeping at it’, ‘finishing you off’ or anything else. In fact, if you have any common decency you will try to alleviate my pain and distress and worry about your blue balls later.

Grrrr. Stupid people bug the hell out of me.

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Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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21 Comments

  1. Nutty Jennifer
    Nutty Jennifer February 17, 08:27

    So what do u advise…as in how can one have sex without fear of falling ill in between or after…

  2. Simone J.
    Simone J. January 08, 04:24

    I thought I was the only one who experienced SC pain during sex. It has only been happening recently, and usually the pain lasts an extremely long while. Very frustrating to feel awesome one moment and screaming or crying in agony the next.

  3. AB
    AB January 17, 16:57

    Lots of times I try to take a couple of Moltrins or some type of painkiller right before I know I will probably be having sex…Even a couple of hours before I know sex is happening is sufficient…That works miracles…

  4. eddmane
    eddmane October 30, 13:15

    i want to have a kids without me dying after how can i do that?

  5. Sickle Cell Warrior
    Sickle Cell Warrior Author November 12, 16:13

    @edgarinhere19, Just make sure you have good OBGYN care. I had twins with a difficult pregnancy but I survived. Are you based in the US or somewhere else>?

  6. manielly
    manielly December 05, 23:43

    I am scared of going into relationship n marriage issue bcos I am scared of dead during child birth is dere any way to prevent crisis during child birth

  7. Sickle Cell Warrior
    Sickle Cell Warrior Author December 21, 00:22

    @Manielly, I had a crisis while I was pregnant with my twins. I was hospitalized for 64 days and in pain the whole time. But here I am, a year later bouncing my twin boys on my lap. Pain is fleeting…having a child is forever. I was afraid of dying too but thankfully I made it through. Just try to have the best medical care possible, you need to have a high risk OBGYN on your case, and go with an experienced health care provider. Pray and have your loved ones pray for you. Many of us with sickle cell are having children, and it is possible. Don’t give up hope. If you are scared, you can also consider having a surrogate (where someone else carries your fertilized egg/sperm pregnancy, or going for adoption.)

  8. Stop and Think
    Stop and Think May 24, 06:24

    If you have sickle cell please make the decision not to have children and stop thinking of yourselves only. I cannot believe how people are willing to pass on this absolutely horrific disease even now in the 21st century to their unborn children…and actually want to do it. I can understand how it was passed on in the 60’s and 70’s but now there is no excuse. We know too much about the disease and suffering it causes before anyone gets pregnant. The horror of the pain for people who have SCD and the untimely painful deaths should be enough to convince people to end this torture by not having children. It is terrible but the one human trait that will NEVER die is selfishness and bringing unborn children to face a horrific hell by telling yourself…oh its not so bad. Why can’t people ask their partners if they have sickle cell disease or the trait before they have children with them. What is so difficult about doing that? I hope one day testing will be compulsory and if the child will not be born with just the trait, then the couples will be sterilized because this is nothing more than IRRESPONSIBILITY. This is the truth and no one likes the truth. All they say who are you to judge…believe me I’ve seen enough suffering to judge and know that there is a lot of irresponsibility leading to children STILL being born with this horrific disease. GO AND ADOPT instead of bringing children to hell just because you want to have sex and reproduce. Wake up out of the brainwashed concept that you must reproduce and think of those who are not born yet who will go through years of hospitalization and excruciating pain and early death …not to mention a less than satisfying lifestyle because you must have sex and reproduce. Hope it becomes law one day to stamp this disease out if selfish people wont. And now, you can be sure how many people will think it is STILL OK to bring sick children into this world to satisfy their own desires instead of the child. Some will say …oh you cannot decide for other people about whether to have children with SCD or not…well I hope in time Governments will. China has come up with a two child policy only…One day I hope there will be a ‘NO child born with sickle cell disease’ policy…and trust me…unborn children who would have been born with the disease but no longer have to be born will be grateful.

  9. lee lee
    lee lee July 30, 00:24

    gee im 22 years old an I have sickle cell but my sex drive is gone during my teens I wanted ti have sex all the time but now since I was 21 years old my sex drive is completely lost an I tink its because of the disease has this ever happen to anyone an did u get your sex drive back

  10. Sickle Cell Warrior
    Sickle Cell Warrior Author August 10, 01:53

    @Lee, I don’t think it’s because of your sickle cell. You may have also lost it due to the medications we take. Pain medicines suppress all your feelings and desire.

  11. 5Star
    5Star August 30, 02:09

    Am 22years of age and a sickle cell patient with SS phenotype. I want to ask if it is advisable to have sex with my partner or not due to my condition.

  12. Sickle Cell Warrior
    Sickle Cell Warrior Author September 16, 11:29

    You can have sex, just be careful and follow the instructions in the article.

  13. Jack
    Jack October 20, 16:31

    I am dating with a girl who suffers from sickel cell, can i have sex with her . Does having sex will effect me

  14. Eric
    Eric November 23, 22:46

    My girlfriend is having a sickle cell and she want me to have sex with her,if only i love her but am afraid to be affected by the disease.should i have sex with her

  15. Alvan
    Alvan January 06, 18:35

    #Stop and think, for you information, sickle cell is not a disease and in all you said here, you are totally wrong.

  16. lily
    lily February 06, 07:15

    am 23yrs old ss ,stop and think you got all wrong,we knw the right genotype to marry AA and we also know that God will send Gud AA men and women to marry us and with God we shall make it through.cos I only believe in Gods report not men.Once I clocked 25 am having a baby with or without pain the joy of motherhood is worth the pain…so help me God I also urge u as Scd patient always be optimistic ur case is different from others. #havefaithGodisagracioisGod!

  17. Sickle Cell Warrior
    Sickle Cell Warrior Author February 14, 01:21

    Eric, you cannot catch Sickle Cell from sex. This is a genetic condition which means that you only get it from birth. However, before you have sex with her, you should get yourself tested to make sure you do not have sickle cell trait. If you have sickle cell trait, there is a high probability of if you do get her pregnant having a child with full-blown sickle cell disease. This is what we are trying to illuminate so get yourself tested, at least twice to make sure you don’t have the trait.

  18. Mikejonez
    Mikejonez February 23, 01:17

    Interesting subject. I myself am a man with sc ss. Can’t speak for the women (sorry) but what works for me is a supplement by the name of l-arginine and l-cituriline. They both increase blood flow which I highly recommend to anybody with sc. For the arginine it comes in 2 forms tablets and powder and the cituriline only comes in tablets. For myself I’ve noticed that taken these makes me feel so good meaning not restricted and the sex is also good i mean better for you’ll know what I’m talking about men. I don’t know the effects it has on women during sex but I do know that they’ll benefit from the increased blood flow. There’s also a testosterone supplement called erasepro plus but with this you have to workout to take it and it gives you a very dry feeling in muscles (soreness)but it helps with the male libido. I’ve also taken this and felt great for I took fish oil to lubricate the joints to ease the soreness of this supplement. The arginine and the cituriline can be found at your local nutrition store and some drug stores and are pretty reasonable price wise. However the erasepro plus is very expensive but works. There’s one other supplement that’s made by the same brand as the erasepro plus (pescience) called anabeta and I’ve haven’t tried it yet but it helps you gain weight by increasing your appetite and I think men and women can take it. I do urge you to research these supplements and consult a doctor before trying anything but they help people with sc it’s just not out there like that. Hope this helps email me for any questions. Peace.

  19. Andrew
    Andrew February 27, 03:26

    Am ANDREW
    i have sickle cell
    i’ve got a girl friend but before having sex with her
    One day i had rumours saying that people with sickle cell are nont required to play sex.
    that if they play sex they die.
    and from that day i felt scared and i have never played sex since i was born
    fearing that i may die.

    QUESTION?

    DO PEOPLE WITH SICKLE CELL DIE IF THEY PLAY SEX?

    OR

    WILL I DIE IF I PLAY SEX?
    ANSWER ME PLEASE I WANT TO KNOW.

    THANK YOU.

  20. André
    André March 01, 02:42

    Am 19y am a man and i’ve never had sex coz i hear romous saying that people with sickle cells are affected by pain during sex.

    Question?

    Do sickler men also get pain when having sex?

  21. Mr.Asha
    Mr.Asha April 22, 15:31

    Hi guys, am 30, and am with SCD, its has not been easy all through the years but i survived. i really want to stop having sex i get scared of have having after sex because it has become frequent experience for me, i am having pain at the moment. i dont know how i can stop my sex drive and to make my wife understand, i already have a baby girl, please what do you advice me to do?

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