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Research Study Request: Chronic Pain in Sickle Cell Disease

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Research Study Request: Chronic Pain in Sickle Cell Disease

From time to time, we get requests from researchers who would like members of the sickle cell community to participate in various types of research. This inquiry has been pre-screened, and your info will be kept confidential and private. Please use your own judgement, and only proceed if you fee comfortable doing so. Terry is looking for 8 people to participate in his doctorate thesis on sickle cell disease. Please contact him directly.

Participants Wanted for a Research Study

“The experiences of individuals with chronic pain caused by SCD: A Case Study”

 This research study seeks to understand the experience of individuals living with chronic pain caused

by sickle cell disease.

Participation in this study will include either a face to face interview or a phone interview.

This interview will be approximately 1-1.5 hours in length

To participate in this study:

  • You must be over 18 years of age
  • You have been diagnosed with sickle cell disease
  • You experience chronic pain

This research will be conducted at:

Face to Face: the closet local library with a private room

Telephone: When you are without distraction for 1-1.5 hours in your home

For more information call:

Terry Rhone- 843-830-4184

Please limit call hours to 6-9 pm M-F and 1-9 pm on Sat


This research is conducted under the direction of the Harold Able School of Psychology, Capella University

Research Study Request: Chronic Pain in Sickle Cell Disease - overview

Summary: Are you interested in participating in a research study? A doctorate student at Cappella University would like to interview 8 adults living with SCD on their chronic pain. See above and contact him directly.


About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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  1. Boluwatife
    Boluwatife May 24, 13:47

    I would love to participate i meet the qualifications. from Nigeria.

    ADFDNT June 07, 05:13

    I really like the information you provide, the information you provide is very helpful for others is no explanation of Understanding the symptoms and disease prevention Sickle Cell Anemia read here and-disease.html

  3. CC
    CC February 17, 12:07

    I’m wanting to find out more about nicosan.My daughter is 19 years old,faces doctors often who puts their life on hydroxyurea. She’s been on it before but didn’t like the side effects and plus research steered her against it. A while back I read where you were having problems getting it from Nigeria due to embezzlement issues with the company. I’d like to find out if that’s still the case and do you know where we can purchase nicosan.

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