Sickle Cell Warriors

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 Breaking News
  • Genetic Testing for Families Genetic Testing for Families Affected by Genetic Recessive Disorders DNAcheckup is a fairly new non-profit organization geared towards providing affordable DNA testing to families of patients with previously diagnosed recessive genetic...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Plans and Updates

In July I have 2 trips planned, one to visit my family in Indiana and another to see my friend in Canada. I’m really excited and can’t wait, but you know I’m still filled with the trepidation that every sickle cell warrior goes through when the holiday time comes around—Am I Going to Fall Sick? My last trip flying to Hawaii was filled with pains and rigors, and of course a major crises when I got home. Although it’s not in my usual routine to be sick in July—there is always the first time for everything.

Today was my first day of classes, I’m finally going back to school for my advanced degree. It’s so weird having to learn APA style all over again for school, but I’m sure that I’ll get used to it after a while. Why—oh why do they make us use APA?

About Nicosan, alls well on that front. No major changes so far from the last report. I told my mom about it so hopefully she will score a few bottles on her way over here to visit. So all in all this has been a pretty good week for me, just a couple of minor L2s daily and nothing requiring narcs this week. Yay! Go me!

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Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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