Sickle Cell Warriors


 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

People with the Trait Have Pain Too!

This is a comment from one of my readers that is 46 that has the sickle cell trait but not the disease.

Some times I have unexplained pain in one of my feet, but it’s usually only when it’s cold, and after reading some of your blogs, I see that cold weather seems to trigger it. I also have a daughter with the trait and she has complained of pain and headaches. She has headaches ALL the time, almost daily and have of course been tested for things but no Doctor ever suggested that it could be from the SS. Do you know if SS trait causes a lot of headaches?

The only times that I have headaches with my sickle cell is when I’m in a full blown crises and I’m having pain all over my body. I haven’t heard of it a symptom of sickle cell, but then again I’m not an expert. She might have some other underlying condition, nutritional imbalance or health issue that we aren’t aware of. Another thing is to make sure that she’s getting enough sleep. I’ve noticed that when Norio doesn’t get enough rest at night, he wakes up with headaches. Besides that I’m out of ideas.

Does anyone else have input on this?

Thanks for sharing your experiences with me and good luck and God bless both you and your daughter.

About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

Related Articles


  1. Tokunbo
    Tokunbo February 01, 02:11

    Sickle cell trait can contribute to a few things and can cause pain. Those with trait who are exposed to extreme circumstances can develop pain .One source put it this way “under intense stressful conditions, exhaustion, hypoxia (low oxygen), and/or severe infection, the sickling of the defective hemoglobin may occur and result in some complications associated with the sickle cell disease.” A person with trait can develop pain under such circumstances. Dehydration can trigger body aches and headaches. In addition, pregnant women with sickle cell trait are at increased risk of urinary tract infections and kidney infections and they may not feel it till it is serious.

  2. Sickle Cell Warrior
    Sickle Cell Warrior Author February 10, 05:08

    @Tokunbo, great points. Always nice to have more input here on the site

Write a Comment

This site uses Akismet to reduce spam. Learn how your comment data is processed.


Support awareness & education for SCD

WordPress › Error

Error! Donation amount must be a numeric value.