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Nicosan Trial: Week One

Okay, several people have voiced concerns over me getting a crises a few days after I started taking Nicosan. I truly don’t believe that it was related or that Nicosan triggered my crises. I think that I was rundown, sick, dealing with the stress of the trip, traveling, the new job and strep throat. All these factors by themselves can trigger a crises, talk less of all of them combined. So let’s rule out the fact that Nicosan caused the crises…that’s totally not true.

My primary care physician does know that I’m taking Nicosan, although he doesn’t recommend it (he would prefer I take Hydroxyurea). But I have to do what I feel is best for me and he knows this. He is going to monitor my progress with Nicosan off the record.

The medication comes in a large capsule that goes down very easily. I’ve taken it faithfully for a week, and I haven’t had any pains at all! I don’t know if it’s relatable, but I’m trying to be as objective as I can. Usually I have pain minimally twice a week or more, however this week I haven’t had any.

There have been absolutely no side effects, my appetite is the same, my energy level is fine and my blood work is great. My hair isn’t falling out. The only documented side effect from Nicosan is flushing (like blushing on white people), but I haven’t experienced this once.

So that’s the update for the first full week on Nicosan.

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Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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