Sickle Cell Warriors

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New Adult SCD Study

The Adult Sickle Cell Quality of Life Measurement Information System
(ASCQ-Me) Project is creating a tool to help doctors and researchers
across the U.S. better understand what it’s like for adults living
with sickle cell disease.

By understanding how sickle cell affects a person’s daily life –
like how it affects sleeping, eating, being able to move around,
emotions and feelings, and the way people spend time with family and
friends – researchers can better determine the real effects of
different treatments and doctors may be better able to provide
high-quality care.

We want to find out what it’s like to live with sickle cell disease
from the people who know best. We are seeking adults with sickle cell
disease to take the draft questionnaire.

All of the research is confidential and voluntary, and all participants
will receive $80 as thanks. If you live in the Baltimore/Washington area
and are interested in the study, please call 410-455-1586 to get more
information and see if you are eligible.

This project is being funded by the National Heart, Lung, and Blood
Institute (NHLBI).

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Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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