Sickle Cell Warriors


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  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Meet KiAnna – Daughter, Wife, Warrior

KiAnna S. Facebook

Meet KiAnna – Daughter, Wife, Warrior

Hi, my name is KiAnna and I’m 24 going on 25 this spring. I’m adopted and the oldest of 11. 5 adopted, 5 biological to my adopted parents, and 2 in-laws! Recently married to my best friend and love Kyle!

I was born to a very young couple. My birth father died when he was my age (24). So I only knew him for the first two years of my life. Birth father had SS Disease and birth mother Sickle Cell Trait. After having two strokes (ages 4 and 7) I was put into foster care because my birth mother was on her own and her family didn’t help out. She was very young, three young children, was also sick, and no support.

My foster parents ended up adopting me at age 10 and my two biological sisters 2 years later. My parents have been so loving and patient with hospital visits, surgeries, pain, and tears. They were and still are supportive of me and everything I do. I keep in touch with my birth mother and her other biological children.

I was healthy for 4 years because I started taking Hydroxyurea, but one month after my marriage, I suffered a series of mild stokes and a pain crisis. It was my husband’s first experience with it, so it was very emotional for both of us. Thank God for my parents, even with them 4,000 miles away. They helped Kyle through it.

I feel extremely lucky to have parents that took me in and show their love for me. I’m lucky to have found someone who Is willing to take care of me for the rest of my life.
I am still taking Hydroxyurea. I have been for 5 years and have had two crisis’. I have recovered from my strokes. I have a little damage from the strokes from when I was 4 and 7 years old, but from the ones this winter, no damage done. I’m feeling a lot better.

Praise God I’m still alive!! I’m 24, suffered 2 major strokes, a series of mild strokes, SS Disease, meningitis, pneumonia, ECT… Just praise God I’m still alive!

Meet KiAnna – Daughter, Wife, Warrior - overview

Summary: Since today is Valentine's Day, meet KiAnaa, a warrior who has experience love in all its myriad shades.


About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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1 Comment

  1. Q
    Q February 20, 12:54

    I think it is amazing and we have similar upbringings. I was in foster care from ages 4 to 17. I also have sickle cell but I have sickle beta thalessemia +. No one believed my crisis because they say I shouldn’t have any. I was told I didn’t have sickle cell and was taken off ALL medications. While at school I fell out during ROTC PT and was rushed to the ER. You know the rest, Lol they put me back in all medications and was doing better. I am now 24 going on 25 in August. And I now have Epilepsy along with the sickle cell and my biological grandmother (whom I just met three years ago) have been my biggest supporter. I can only thank God for all he has done and continuing to do. You are a living testimony that it only gets better and we can have “normal” lives and we happy. Thank you for sharing

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