Sickle Cell Warriors


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The flight to Hawaii was really long, about 8 hours in total. I was worried that my sickle cell would flare up but it held up. The main thing is that I can’t go into the water as much as I would like to because my core body temperature drops when I’m immersed in water. Plus my right leg and knee has been paining me all week long and is causing a serious dent in this holiday. Every day it is getting better, the pain a little less, but I’ve been taking painkillers around the clock to keep from getting into a crises while on vacation.

Norio has been really worried, he wanted to cancel the whole trip because I was having pain the 2 days leading up to it. But this is one of those once in a lifetime vacations that I would have totally kicked myself for missing. I very stubbornly told him, “Sickle cell took over my graduation, my birthdays, and every single major holiday in the last 4 years. it’s NOT taking my vacation dammit!”

I’ve done pretty much everything that I’ve wanted to do so far, just stayed on shore though, I don’t want to antagonize myself into a crises. The house is beautiful, the beach is surreal and the ocean is absolutely sublime. I totally can understand why people have their weddings here, it’s so romantic.

Tomorrow morning the plan is to go kayaking and ‘swimming’ with the dolphins. I’ll be onshore about 2 miles away but I hope Norio can get some good pics for me.

Hope you all are doing well and aloha from Kona!


About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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