Sickle Cell Warriors

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 Breaking News
  • VOICE Crisis Alert App VOICE Crisis Alert App The VOICE Crisis Alert app is the first national app created for patients and families with sickle cell disease. The app stores all its data locally...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

Live Your Pain

Scars that bind
Tears that fasten me to u
Our pain unites us
So be true to this emotion
live without shame your wounds
Carry your head high as the tears flow.
Let the tears fall and express your pain
without reservation, without regret
because the more we share our pain
the closer we become.
Pain shared is real, true, pure
I can’t fake pain, so why do I try to hide the most true part of who I am?
Why are we so ashamed of that which makes us most human?
Why do we hide our tears and fears and put on a mask that is not us?
Void of pretense pain exists to connect us, it exists to remind us, it exists to unite us.

So live your pain
Live it out loud
Let the tears fall
No shame.

By: Kafo, 2009 aka lil sis

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Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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