Sickle Cell Warriors


 Breaking News
  • Genetic Testing for Families Genetic Testing for Families Affected by Genetic Recessive Disorders DNAcheckup is a fairly new non-profit organization geared towards providing affordable DNA testing to families of patients with previously diagnosed recessive genetic...
  • World Sickle Cell Day 2018 Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and...
  • SCD Adult Support Groups in Southern California California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with...
  • Tracing sickle cell back to one child, 7,300 years ago Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The...
  • Meet Brittany: Caregiver, poet, and writer This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old...

It’s Your #SickleCell Birthday!!!

It’s Your #SickleCell Birthday!!!

ballonsHello warrior family,

Sickle Cell Warriors has decided that from now on, we are going to be celebrating World Sickle Cell Day as designated by the World Health Organization as June 19th to be our official Sickle Cell Birthday. Why a birthday? Because a birthday is always a cause for celebration and we are celebrating that we have made it through another year.

Here is a letter that I posted on my Facebook page and shared with all my friends and family. I’m planning a dinner party to celebrate my #SC Birthday and I hope that you plan something too! You can personalize your letters, but here is mine posted below! I decided to start talking about it early so that no-one will say they didn’t hear about it. I”m going to post something everyday until all my friends know about my #SC Birthday bash!


Dear friends and family, FYI, my #SickleCell Birthday is coming up on June 19th. This is the official World Sickle Cell Day as chosen by WHO. I take this more seriously than my legal birthday or my half birthday. To me, this day means that I have survived another year of battling sickle cell disease and I celebrate it because I can…I’m alive!!! You didn’t have to read my obituary this year, have to send crappy carnations to a funeral home, or never see my smiling face again. This is also a celebration for you, because your prayers, well-wishes and love guided me through 3 major hospitalizations, countless bags of blood transfusions, pain 85% of the time, and sick calls almost every month at work. You guys know, it was a super rough year. So celebrate with me.  

On June 19th, I expect this page to be full of Happy Sickle Cell Birthday wishes. In lieu of gifts, please make a donation to my non-profit to help spread sickle cell awareness and advocacy. Read about our financial objectives here: and if you are moved, please make a tax-deductible donation here: Set your calendars and let the countdown begin. Muah!


Related posts:

About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

Related Articles


No Comments Yet!

There are no comments at the moment, do you want to add one?

Write a comment

Write a Comment


Support awareness & education for SCD


Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

Join the Sickle Cell Warriors Database

Become a warrior. Sign up to be a team leader/member. Get contacted directly by SCW about events and research in your area. YOUR INFORMATION WILL NOT BE SHARED/SOLD TO ANY THIRD PARTIES. (See privacy policy)
Example SS, SC, Beta Thal, Monroe, etc.
You will receive pre-screened research opportunities on sickle cell disease
You will receive info about the sessions on the advocacy training classes
Read more here:
* = required field
Interested in local meetups?

powered by MailChimp!

Join us on Facebook!



have data = false

This is a demo store for testing purposes — no orders shall be fulfilled. Dismiss