Downloads
This is a collection of documents that have been submitted to SCW to share with the sickle cell community. Most of them are documents created or developed by those with sickle cell for those with sickle cell. All rights belong to the original owners, and the documents are only available here for informational purposes. If you would like your document included, please send it to editor@sicklecellwarriors.com.
Downloadable Literature from St. Jude’s Children’s Hospital
St. Jude’s has collated a treasure trove of information that is free for download. These tracts can be used for your own learning, or discussion with your child, teachers, physicians, colleagues, family or friends. You can peruse the topics and download them free HERE.
Developing an Expert Patient Program for SCD in the USA
This is collated by Hari Prabhakar in Harvard University. This document explains how to create a self-management program for sickle cell. Covers most topics that people with sickle cell go through. Great for groups, organizations and individuals that want to understand the bigger picture of sickle cell. Download it here: Download
Sickle Cell Guide
This is an informational document created by Paul Barton and Ruth Akinboye. This is an excellent resource for parents, teachers, family members, and people with sickle cell and want to know more about the condition. The guide is very easy to read, and is only 24 pages. Download it here: Download
The Following Resources Developed by DeMontFort University in Leicester, United Kingdom
Parents’ Guide: Care and Management of your Child with Sickle Cell Disease
SCD Soldier Network
Very Bright Foundation