Sickle Cell Warriors

Letter from Founder

Letter from Founder

Sickle Cell Warriors is the #1 patient-run community based organization on the web for those with sickle cell disease, and has over 20,300 people as registered members. Visitors come from all over the world every month–with millions of page views and visits. We strive to bring you an honest, unfiltered view of what is happening in the sickle cell disease community. We typically don’t use advertisers, popups, or commercials because we strive to maintain the integrity of the organization and an enhanced viewing experience for our readers.

Backgrund image scw

This website started as a labor of love. I was looking for a site like this in my darkest days, and there was none to be found. And now–10 years later, it’s grown beyond our wildest expectations.

The Sickle Cell Warriors site and social media pages are something special. It’s a group of people from all walks of life, in different parts of the world who are all sharing, caring, learning, growing, and educating each other. It’s a library, club, and meeting place that focuses on the psycho-social aspects of living with sickle cell disease. It is a place we can all go to think, learn, share our knowledge, get advice, and validate our personal experience. There is no other forum like this site for sickle cell disease.

When we founded Sickle Cell Warriors, we could have made it into an advertising avenue to generate millions of dollars in revenue from organizations in the health care industry who need access to patients with sickle cell disease. We could have made it a subscription based service where only those that could afford it would enjoy the benefits of the site.

But we decided to do something different. We strive to protect the privacy of our users. We do not share your information or sell to third parties. We have worked hard over the years to keep costs to a minimum and every other cost has come directly from our own pockets. We fulfill our mission efficiently. Behind the scenes, it’s just me and Lakiea working tirelessly to build this organization into a bastion of hope, and a portal of information dissemination for the sickle cell community. Considering we both have full time jobs, school, careers, lives, AND sickle cell disease, well, you can see why we desperately need more help.

Sickle Cell Warriors has the potential to do for sickle cell disease what the Susan G. Komen foundation has done for breast cancer. We want to grow, provide more services, and further engage the community. We want to support health care initiatives, influence legislature, and play a critical role in the fight against sickle cell disease. We want to do more and are only limited by the very financial limitations of the world. The vision we have for Sickle Cell Warriors is going to benefit all of us. But we can’t do it without your help. If everyone reading this donated, our fundraiser would be done within an hour. But not everyone can or will donate. And that’s fine. This is our first time putting out a general call for donations this way. We know that this will help take the organization to the next level.

This year, please consider making a donation of $5, $20, $50, $1000, or whatever you can to protect and sustain Sickle Cell Warriors, Inc. You can choose how much (or how little) you wish to donate.  Sickle Cell Warriors has been there for you and your loved ones when you needed us. Now please, be there for us.

Thank you so very much!

Checks and money orders can be sent directly to our PO Box:

Sickle Cell Warriors, Inc.
PO Box 235973
Encinitas, CA 92023

Tosin Ola 
Sickle Cell Warriors, Inc.
Founder and President


Support awareness & education for SCD


Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

Join the Sickle Cell Warriors Database

Become a warrior. Sign up to be a team leader/member. Get contacted directly by SCW about events and research in your area. YOUR INFORMATION WILL NOT BE SHARED/SOLD TO ANY THIRD PARTIES. (See privacy policy)
Example SS, SC, Beta Thal, Monroe, etc.
You will receive pre-screened research opportunities on sickle cell disease
You will receive info about the sessions on the advocacy training classes
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