Sickle Cell Warriors


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Dealing With Sickle Cell When You Don’t Have Insurance

Okay, so we all know what a load of crap the medical system in the USA is. It’s even way more difficult to deal with it when you have a chronic illness like sickle cell. This is because you have to always make sure that you have insurance, because if you fall into a period that you don’t, 9 times out of 10, that’s when you will have a crises. And with the crises comes the bills and the credit collectors. Thank God for caller ID.

When I first got to the US, I was covered with Blue Cross with my mom’s job. However, once I hit 21, I got booted off the coverage and I had to look for insurance on my own. It was okay when I had a regular job that covered me, but falling sick alot in 2005 finally took a toll on my employment opportunities and I was without a job, without money, without insurance and falling sick every 2-3 months.

Needless to say, my credit is totally shot. But I’m not worried about it anymore. See when you are sick, and you go to the hospital, the hospital HAS to treat you. It’s against the law for them not to give you treatment because you don’t have insurance.

When you get admitted, make sure you let your doctor and nurse know that you want to speak to the social worker. The social worker is the key to your getting your financial situation straightened out. A good social worker will help you apply for the right programs that will get your bills paid without you lifting a finger. There are alot of charities out there that cover hospitals, and funds that you won’t even know about. As long as you don’t have a job and no insurance, you are in like Flynn.

If the social worker is a dumbass, be sure to mention the magic phrase, “Apply for Medicare”. Everyone is eligible for Medicare, not just the old folk. You paid into that system (and if not you, your ‘rents did, so get yours!). Apply for Medicare and it can retroactively kick in to cover your medical costs. As long as you apply within 90 days of your hospitalization, they will pay for it. It’s your responsibility to make sure your paperwork is on point, dot your i’s and cross your t’s. Answer every question to the best of your ability. Use a current address and phone number (if they can’t contact you, they will deny your claim.) You will be asked to show supporting documentation of your brokeness, like a bank statement and submit a letter stating that someone else (boyfriend, family friend, cousin) is supporting you and letting you live with them free of charge or with minimal expenses.

Once you turn in all the paperwork, you will be contacted by the county social worker, who will review your file and pretty much assess if you are eligible. Be honest but not stupid. For example, don’t tell her you smoke weed for pain control. If she asks if you contribute anything to the household, the correct answer is yes. Even if all you buy are groceries once in a while, bus passes or tampons, you have to state that you contribute to get a higher overhead.

If you ace that interview, then you will get your Medicare package which has your card and some letters that you have to make copies of and mail to all the people harassing you with bills. They will then retroactively file claims to get the money that you *owe* them from Medicare. The only hangup is that you are allowed a certain amount per hospitalization, and if you go over that Medicare won’t pay extra. I think it was $12,000 for California and anything over that got tacked on to me.

So whatever you don’t pay, you can get on a payment plan with the creditors. It’s better if the plan doesn’t add a ridiculous interest rate every month, or if it’s less than $500 bucks, that way you have a chance of paying if off. But if it’s more than you can handle, just ignore them and they will eventually add it to your credit. Once it’s on your credit report, as long as you don’t acknowledge it as a legitimate debt, it falls off in 7-8 years (depending on your state). You can contact Experian and add a note to your file that states that it was because of medical expenses.

I know it sucks to have screwy credit, but there is not way that I’m going to get a loan to pay a $50,000 hospital bill. When you do look at the itemized hospital bill, you will seen absolutely inflated prices for everything from IV flushes to lab work. Logistically it doesn’t cost that much, but a hospital is like a business and they have to make money too. I just wish they had different rates for those that have insurance versus those that don’t.

So make the system work for you. Be sure to renew/reapply for Medicare every year. It’s good to have it as a backup in case you do fall out of favor. Another good supplemental insurance can be found at Get this, these guys will actually pay you when you are admitted. There is a certain amount you get per day per hospitalization. That way you don’t have to worry about going back to work just because you are broke. In addition, they have other plans that take care of the extra overhead for being sick, like prescriptions, deductibles and your co-pays. It’s alot of paperwork, but then by now you are a paperwork pro.

Just remember when you are feeling overwhelmed by the bills that there is a way out. Tell the creditors to stop harrassing you and contacting you. You don’t have to go through this alone and if all else fails, just automatically develop a *fuck ’em* attitude and continue on with your life.

Good luck!


About Author

Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin's message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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