Sickle Cell Warriors

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Could Your Blood Cells be Used for Research Without Your Permission?

There is scandal and drama over at the National Heart, Lung and Blood Institutes! Last year, Dr. Bonds, the principal Sickle Cell Disease research director, found out that the NHLBI was using the blood of sickle cell patients enrolled in clinical trials to create immortalized cell lines for future study without proper informed consent.

This is illegal (all blood and tissue specimens for research MUST have informed consent for all participants).As the project director, she instituted a policy to destroy these cells and reported this oversight to the administration. However, she was met with resistance, and was basically black-balled by the administration in keeping the cells active, and then fired a few weeks later.

Dr. Bonds had gone up the chain of command in reporting the incident, and when this didn’t work, she went to the oversight board to file a complaint about the improper practices. She took the case to court, and won the right to a federal court trial. We will be following this case with marked interest but we want to know, after reading the article, whose side are you on? If it was your blood being used without consent, how would you feel? Share your thoughts in the comments section.

Do you have a problem with your blood being used for research without your consent? Share your thoughts in the comments section.

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Sickle Cell Warrior

Sickle Cell Warrior

Tosin is dedicated to perpetuating healthy and positive messages about sickle cell. Although sickle cell is a subject often taboo in the communities this condition is most prevalent, Tosin’s message is that sickle cell is not something to be ashamed of and you can live a rich and fulfilling life with sickle cell. Sickle cell warriors are the most amazing people in the world, with a great fortitude for compassion, willpower and strength.

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