Advocacy and Activism

This section focuses on news in advocacy and activism for sickle cell disease. Get the latest on actionable legislative actions, state advocacy efforts, local, national, and global campaigns to improve care and the lives of those with SCD. We need your voice. Get involved, sign a petition, use your network, call your house representatives and senators, share your story, and make an impact.

Rainy Lake Medical Center, International Falls, MN – Negative Review

Hello everyone, Patients all over the world struggling with sickle cell disease often go to the hospital when they are in a crisis and receive...

Sickle Cell and Endari

**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website. Hello...

Sickle Cell Disease Handbook by APHON

Sickle Cell Disease Handbook for Patients & Families The Association of Pediatric Hematology/Oncology Nurses has developed a resource for sickle disease patients and their families. The...

Sickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017

Sickle Cell Warriors has exclusively partnered with Global Blood Therapeutics (GBT) to livestream the Annual Sickle Cell Disease Therapeutics Conference from New York City...

Stop Mistreatment of Sickle Cell Patients in the Emergency Room

Question: G. Jones says, "What can we do to stop mistreatment of SCD patents in Hospital and being lable as Drug seekers. Like our pain...

You Can Make a Difference!

Hello everyone! Sickle Cell Warriors, we often hear complaints that there is not enough being done for Sickle Cell Disease. I'm extremely disappointed to find...

Get Well Wednesday: RN Tosin Ola Answers Your Sickle Cell Questions

Hey Warrior Fam, Check out our Founder, Tosin Ola's interview with the Tom Joyner radio show. Repping for Sickle Cell all the time. Awareness is...

Sickle Cell Action Network at 1pm PST Tuesdays

Here is another excellent  resource dedicated to sickle cell disease. Gary Gibson, President of the Martin Center Sickle Cell Initiative has been hosting this...

Sickle Cell Warrior Heather on Dr. Phil Show

One of our esteemed Warriors in the Spotlight, Heather Avant was featured on the Dr. Phil show on December 17, 2015. She talks about how...
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