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Advocacy and Activism

This section focuses on news in advocacy and activism for sickle cell disease. Get the latest on actionable legislative actions, state advocacy efforts, local, national, and global campaigns to improve care and the lives of those with SCD. We need your voice. Get involved, sign a petition, use your network, call your house representatives and senators, share your story, and make an impact.

Sickle Cell Spoken Word Poetry

Spoken word is an oral art that melds together words and phrases in beautiful patterns that are punctuated by intonation and undulation.  Take a...

You Can Make a Difference!

Hello everyone! Sickle Cell Warriors, we often hear complaints that there is not enough being done for Sickle Cell Disease. I'm extremely disappointed to find...

Stop Mistreatment of Sickle Cell Patients in the Emergency Room

Question: G. Jones says, "What can we do to stop mistreatment of SCD patents in Hospital and being lable as Drug seekers. Like our pain...

Organization in the Spotlight: Baton Rouge Sickle Cell Anemia Foundation

Learn more about the Baton Rouge Sickle Cell Anemia Foundation, and reach out to them or the sickle cell organization in your neighborhood to see how you can help!

Expert Patient Series Register HERE!

Registration for the Expert Patient classes is now open.

Starting a Sickle Cell Movement in Your ‘Hood

There are so many ways to get involved with sickle cell. For those of you wanting to start your own group, here are a few ideas to get you started

Show Your Rare!

The #ShowYourRare campaign was launched in 2018. The campaign has inspired the Rare Disease Day 2019 poster and videos. Rare diseases affect an estimated 300 million people around the...

All About the Sickle Cell Gathering

Hey Warrior Family! We hope you are doing well. Sickle Cell Warriors, Inc. is planning the 2nd Annual Sickle Cell Community Gathering and Educational Symposium. This...

Are You a Victim or Warrior?

It's so easy to sit back, complain, and expect things to change, but if we are not a part of the change, solution, and activism; then we are a part of the problem. Tamera eloquently addresses several issues plaguing the sickle cell community.

World Sickle Cell Day Activities!!!

Hello everyone! As you probably know, World Sickle Cell Day is around the corner on June 19th! This was established by the World Health Organization...
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