Sickle Cell Warriors

Advocacy and Activism

Public Meeting for Patient-Focused Drug Development on Chronic Pain

    Public Meeting for Patient-Focused Drug Development on Chronic Pain

Public Meeting for Patient-Focused Drug Development on Chronic Pain Meeting Information On July 9, 2018, FDA is hosting a public meeting on Patient-Focused Drug Development for Chronic Pain. FDA is

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5th Annual Lowcountry Sickle Cell Disease Symposium

    5th Annual Lowcountry Sickle Cell Disease Symposium

5th Annual Lowcountry Sickle Cell Disease Symposium Therapeutic Options in Sickle Cell Disease Saturday, April 28, 2018 MUSC Drug Discovery Building 97 Jonathan Lucas Street Charleston, SC   Conference Description Sickle

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Registration Open for Sickle Cell Patient & Family Convention 2018

    Registration Open for Sickle Cell Patient & Family Convention 2018

Hello Warrior Family, Registration is now open for the 2018 Annual Sickle Cell Patient & Family Educational Symposium. To learn more visit www.sicklecellconvention.com. This is the same one that we

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Rainy Lake Medical Center, International Falls, MN – Negative Review

    Rainy Lake Medical Center, International Falls, MN – Negative Review

Hello everyone, Patients all over the world struggling with sickle cell disease often go to the hospital when they are in a crisis and receive poor medical care from healthcare

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Sickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017

    Sickle Cell Drug Therapeutics Conference LiveStream Sept. 14, 2017

Sickle Cell Warriors has exclusively partnered with Global Blood Therapeutics (GBT) to livestream the Annual Sickle Cell Disease Therapeutics Conference from New York City on September 14 at https://www.facebook.com/SickleCellWarriors/. This is

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Stop Mistreatment of Sickle Cell Patients in the Emergency Room

    Stop Mistreatment of Sickle Cell Patients in the Emergency Room
Question: G. Jones says, "What can we do to stop mistreatment of SCD patents in Hospital and being lable as Drug seekers. Like our pain is not real. We are not
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You Can Make a Difference!

    You Can Make a Difference!

Hello everyone! Sickle Cell Warriors, we often hear complaints that there is not enough being done for Sickle Cell Disease.

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New Warrior Channel: Lady Bunkumi & Sickle Cell

    New Warrior Channel: Lady Bunkumi & Sickle Cell
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Get Well Wednesday: RN Tosin Ola Answers Your Sickle Cell Questions

Hey Warrior Fam, Check out our Founder, Tosin Ola’s interview with the Tom Joyner radio show. Repping for Sickle Cell

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Sickle Cell Action Network at 1pm PST Tuesdays

    Sickle Cell Action Network at 1pm PST Tuesdays

Here is another excellent  resource dedicated to sickle cell disease. Gary Gibson, President of the Martin Center Sickle Cell Initiative

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Bi-Annual Update of Sickle Cell Warriors™

    Bi-Annual Update of Sickle Cell Warriors™

Hello Warrior Family! This letter is a year late but I finally finished it. Apologies for the delay. Read on

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World Sickle Cell Day Activities!!!

    World Sickle Cell Day Activities!!!

Hello everyone! As you probably know, World Sickle Cell Day is around the corner on June 19th! This was established

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Help Sickle Cell Obtain the Rare Disease Pediatric Voucher

    Help Sickle Cell Obtain the Rare Disease Pediatric Voucher

Sickle Cell Warriors!!! We need your help!  Please read the letter below and  send your comment into the FDA. We

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SC Gathering & Educational Symposium Appreciation

    SC Gathering & Educational Symposium Appreciation

WOOHOO!!!! We made it! The 2014 Sickle Cell Warriors Gathering is now officially over! Thank you so much for everyone

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Program for the SCW Gathering & Educational Symposium July 17-20

    Program for the SCW Gathering & Educational Symposium July 17-20

2014 Sickle Cell Community Gathering & Education Symposium PROGRAM AGENDA Please note that this schedule is a guideline, but times/rooms/and sessions are not set in stone. Announcements will be made

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From CT Sickle Cell Org---my favorite SCD PSA.

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