Sickle Cell Warriors

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    Sickle Cell Disease Therapeutics Conference

Sickle Cell Disease Therapeutics Conference

Sickle Cell Disease Therapeutics Conference on September 13, 2018 Global Blood Therapeutics (GBT) will host the 7th Annual Sickle Cell Disease Therapeutics Conference (SCDTC) at the Park Central Hotel in New York City on September 13, 2018.  This annual meeting brings together healthcare professionals, patients, community based organizations and advocates,

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    Books on Sale for Sickle Cell Month

Books on Sale for Sickle Cell Month

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    No More Lifespans!

No More Lifespans!

Join Tosin in this video to learn why you should disregard the number your doctor gave you about your lifespan.  Be inspired to join her in saying, “No more lifespans!”

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    7th Annual Sickle Cell Disease Therapeutics Conference

7th Annual Sickle Cell Disease Therapeutics Conference

The 7th Sickle Cell Disease Therapeutics Conference is a forum to discover the latest advancements and future trends impacting the sickle cell community.  Conference attendees will hear from innovative industry leaders, patients, physicians, community based organizations and biotech companies. For more information about the conference, email scdconference@gmail.com Registration is required. Click

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    Mary: The Story of a Warrrior Wife

Mary: The Story of a Warrrior Wife

I’m not a warrior but I’m a warrior wife, so I’ve spent time on the other side of your story. My story feels like it may have come from a Nigerian movie. I have known my husband for 21 years, we grew up as friends and neighbors. Everything was fine

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    2018 SCD Seminar & Hotel Registration

2018 SCD Seminar & Hotel Registration

Reserve Your Hotel Room Today! All SCD Warriors who register before August 15th are guaranteed a bed at the fabulous Courtyard by Marriott! That means, for $25 the SCD Warrior gets: A bus ride to Sacramento from one of 5 routes To stay four nights at one of the best

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    S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018

S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018

S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018 In February 2018, the sickle cell community celebrated with the announcement of two legislative victories in Congress. First, the U.S. House of Representatives passed H.R. 2410 on February 26, 2018, the Sickle Cell Disease Research, Surveillance, Prevention, and

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    GBT’s Phase 3 HOPE study Results

GBT’s Phase 3 HOPE study Results

GBT Announces Positive Top-line Data from Part A of the Phase 3 HOPE Study of Voxelotor in Sickle Cell Disease Primary Endpoint Achieved; 58 Percent of Patients on Voxelotor Dosed with 1500 mg at Week 12 Exceeded 1 g/dL Increase in Hemoglobin Versus 9 Percent of Placebo (p<0.0001) Company Met

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    Sickle Cell Patient & Family Educational Symposium

Sickle Cell Patient & Family Educational Symposium

The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created and hosted by the sickle cell patient and family community.  Now in its fifth year, the meeting has grown in size and scope. Each year the meeting is hosted by a

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    Meet Aminat: Daughter, Student, Future Finance Mogul, Warrior

Meet Aminat: Daughter, Student, Future Finance Mogul, Warrior

Meet Aminat: Daughter, Student, Future Finance Mogul, Warrior I was 8 when I found out that I have sickle cell. I remembered clearly that I stayed in the hospital for a very long time. My parents took care of me like an egg then because I was a child who

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    5th Annual Sickle Cell Disease Patient & Family Educational Symposium

5th Annual Sickle Cell Disease Patient & Family Educational Symposium

YOU’RE INVITED! The Patients, Caregivers and Community-Based Organizations of the Sickle Cell Community Consortium are pleased to invite you to attend the 5th Annual Sickle Cell Disease Patient & Family Educational Symposium from July 18-22, 2018 in Memphis, Tennessee!  www.sicklecellconvention.com ABOUT THE SYMPOSIUM The Sickle Cell Disease Patient & Family Educational Symposium (known throughout the

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    Meet Jacqee, Daughter, 3rd Grade Teacher’s Assistant, Beautiful, Warrior

Meet Jacqee, Daughter, 3rd Grade Teacher’s Assistant, Beautiful, Warrior

Meet Jacqee, Daughter, 3rd Grade Teacher’s Assistant, Beautiful, Warrior How old where you when you found out you had sickle cell? I was diagnosed with Sickle Cell (type: SC) when I was around 3 months old. I came to my own personal understanding of being diagnosed with sickle cell around

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    Genetic Testing for Families

Genetic Testing for Families

Genetic Testing for Families Affected by Genetic Recessive Disorders DNACheckup is a fairly new non-profit organization geared towards providing affordable DNA testing to families of patients with previously diagnosed recessive genetic disorders. Patients can order the tests online, which will be shipped to them directly. We work with the lab Gene

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    10th Annual SCD Educational Seminar: Integrative Medicine and Sickle Cell Disease

10th Annual SCD Educational Seminar: Integrative Medicine and Sickle Cell Disease

The 10th Annual Sickle Cell Disease Educational Seminar is a forum to discuss integrative and alternative medicine and future trends for treating patients with sickle cell disease and sickle cell trait awareness.  Attendees will hear presentations from the latest on the opioid epidemic, clinical trials, and alternative medicines to public policy, getting your voice heard with the legislatures

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    World Sickle Cell Day 2018

World Sickle Cell Day 2018

Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and awareness of sickle cell disease on a global scale. For us warriors, it is like your sickle cell birthday!!! We

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