Sickle Cell Warriors

Posts From Brooke Editor

    10th Annual SCD Educational Seminar: Integrative Medicine and Sickle Cell Disease

10th Annual SCD Educational Seminar: Integrative Medicine and Sickle Cell Disease

The 10th Annual Sickle Cell Disease Educational Seminar is a forum to discuss integrative and alternative medicine and future trends for treating patients with sickle cell disease and sickle cell trait awareness.  Attendees will hear presentations from the latest on the opioid epidemic, clinical trials, and alternative medicines to public policy, getting your voice heard with the legislatures

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    World Sickle Cell Day 2018

World Sickle Cell Day 2018

Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and awareness of sickle cell disease on a global scale. For us warriors, it is like your sickle cell birthday!!! We

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    Tomorrow, June 19, is World Sickle Cell Day!

Tomorrow, June 19, is World Sickle Cell Day!

On World Sickle Cell Day, Sickle Cell Warriors Takes Action to Improve Global Health Outcomes Sickle Cell Warriors, with the American Society of Hematology and other Sickle Cell Disease Coalition partners, debuts a public service announcement and global resources library to help improve newborn screening and early care for children

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    Novartis to Mark World Sickle Cell Day with Events

Novartis to Mark World Sickle Cell Day with Events

Novartis to Mark World Sickle Cell Day with Events Please join us on June 19 for a worldwide Facebook Live Event in honor of World Sickle Cell Day. The event will feature a panel of global experts and advocates appearing live from Region Europe, LACan, EGM and the US who will share their experience

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    Special Pricing on Books for World Sickle Cell Day

Special Pricing on Books for World Sickle Cell Day

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    Public Meeting for Patient-Focused Drug Development on Chronic Pain

Public Meeting for Patient-Focused Drug Development on Chronic Pain

Public Meeting for Patient-Focused Drug Development on Chronic Pain Meeting Information On July 9, 2018, FDA is hosting a public meeting on Patient-Focused Drug Development for Chronic Pain. FDA is interested in hearing patients’ perspectives on chronic pain, views on treatment approaches, and challenges or barriers to accessing treatments for

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    SCD Adult Support Groups in Southern California

SCD Adult Support Groups in Southern California

California Warriors, great news! Cayenne Wellness is now hosting monthly support group meetings in Fresno, San Diego, Los Angles, Loma Linda, and Antelope Valley. You get to meet others with SCD and get valuable info about improving your health. You also gain an understanding how others cope with SCD, share

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    Sickle Cell Spoken Word Poetry

Sickle Cell Spoken Word Poetry

Spoken word is an oral art that melds together words and phrases in beautiful patterns that are punctuated by intonation and undulation.  Take a moment to hear this amazing spoken word poet shine a light on the world of sickle cell.  We hope you are as moved as we were!

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    Tracing sickle cell back to one child, 7,300 years ago

Tracing sickle cell back to one child, 7,300 years ago

Tracing sickle cell back to one child, 7,300 years ago Check out this amazing article by Nalina Eggert of BBC News for a journey of SCD from 7,300 years ago.  The article contains videos and text that will provide a new perspective for how SCD developed and continues to influence the

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    5th Annual Lowcountry Sickle Cell Disease Symposium

5th Annual Lowcountry Sickle Cell Disease Symposium

5th Annual Lowcountry Sickle Cell Disease Symposium Therapeutic Options in Sickle Cell Disease Saturday, April 28, 2018 MUSC Drug Discovery Building 97 Jonathan Lucas Street Charleston, SC   Conference Description Sickle Cell Disease is the most common inherited blood disorder. Due to improvements in childhood care, many more patients are living

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    Meet Brittany: Caregiver, poet, and writer

Meet Brittany: Caregiver, poet, and writer

This week’s warrior in the spotlight is Brittany Hightower.  Brittany is a caregiver who is beautiful, intelligent, and passionate about poetry. And oh yeah, she has sickle cell. How old where you when you found out you had sickle cell?    I was diagnosed at birth. How were you able

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    Sickle Cell and Endari

Sickle Cell and Endari

**Due to a production issue Endari is not currently available, but as soon as becomes available we will post it up on the website. Hello everyone, great news! Endari is available as of December 17. Endari is a concentrated form of L-Glutamine specially formulated for sickle cell disease. When taken

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    Sickle Cell and the Key to Happiness

Sickle Cell and the Key to Happiness

The Key to Happiness November 11, 2017  Written by: crystalmccrory32 My son has a form of sickle cell anemia that has caused him great pain and suffering throughout his life. It often impedes his physical abilities, sidelining him for important events and milestones other children seamlessly enjoy.  This past year

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From CT Sickle Cell Org---my favorite SCD PSA.

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