Sickle Cell Warriors

Posts From Brooke Editor

    7th Annual Sickle Cell Disease Therapeutics Conference

7th Annual Sickle Cell Disease Therapeutics Conference

The 7th Sickle Cell Disease Therapeutics Conference is a forum to discover the latest advancements and future trends impacting the sickle cell community.  Conference attendees will hear from innovative industry leaders, patients, physicians, community based organizations and biotech companies. For more information about the conference, email scdconference@gmail.com Registration is required. Click

0 comment Read Full Article
    Mary: The Story of a Warrrior Wife

Mary: The Story of a Warrrior Wife

I’m not a warrior but I’m a warrior wife, so I’ve spent time on the other side of your story. My story feels like it may have come from a Nigerian movie. I have known my husband for 21 years, we grew up as friends and neighbors. Everything was fine

0 comment Read Full Article
    2018 SCD Seminar & Hotel Registration

2018 SCD Seminar & Hotel Registration

Reserve Your Hotel Room Today! All SCD Warriors who register before August 15th are guaranteed a bed at the fabulous Courtyard by Marriott! That means, for $25 the SCD Warrior gets: A bus ride to Sacramento from one of 5 routes To stay four nights at one of the best

0 comment Read Full Article
    S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018

S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018

S.2465, the Sickle Cell Disease Research, Surveillance, Prevention and Treatment Act of 2018 In February 2018, the sickle cell community celebrated with the announcement of two legislative victories in Congress. First, the U.S. House of Representatives passed H.R. 2410 on February 26, 2018, the Sickle Cell Disease Research, Surveillance, Prevention, and

0 comment Read Full Article
    GBT’s Phase 3 HOPE study Results

GBT’s Phase 3 HOPE study Results

GBT Announces Positive Top-line Data from Part A of the Phase 3 HOPE Study of Voxelotor in Sickle Cell Disease Primary Endpoint Achieved; 58 Percent of Patients on Voxelotor Dosed with 1500 mg at Week 12 Exceeded 1 g/dL Increase in Hemoglobin Versus 9 Percent of Placebo (p<0.0001) Company Met

0 comment Read Full Article
    Sickle Cell Patient & Family Educational Symposium

Sickle Cell Patient & Family Educational Symposium

The Annual Sickle Cell Disease Patient & Family Educational Symposium is the only national sickle cell convention designed, created and hosted by the sickle cell patient and family community.  Now in its fifth year, the meeting has grown in size and scope. Each year the meeting is hosted by a

0 comment Read Full Article
    Meet Aminat: Daughter, Student, Future Finance Mogul, Warrior

Meet Aminat: Daughter, Student, Future Finance Mogul, Warrior

Meet Aminat: Daughter, Student, Future Finance Mogul, Warrior I was 8 when I found out that I have sickle cell. I remembered clearly that I stayed in the hospital for a very long time. My parents took care of me like an egg then because I was a child who

0 comment Read Full Article
    5th Annual Sickle Cell Disease Patient & Family Educational Symposium

5th Annual Sickle Cell Disease Patient & Family Educational Symposium

YOU’RE INVITED! The Patients, Caregivers and Community-Based Organizations of the Sickle Cell Community Consortium are pleased to invite you to attend the 5th Annual Sickle Cell Disease Patient & Family Educational Symposium from July 18-22, 2018 in Memphis, Tennessee!  www.sicklecellconvention.com ABOUT THE SYMPOSIUM The Sickle Cell Disease Patient & Family Educational Symposium (known throughout the

0 comment Read Full Article
    Meet Jacqee, Daughter, 3rd Grade Teacher’s Assistant, Beautiful, Warrior

Meet Jacqee, Daughter, 3rd Grade Teacher’s Assistant, Beautiful, Warrior

Meet Jacqee, Daughter, 3rd Grade Teacher’s Assistant, Beautiful, Warrior How old where you when you found out you had sickle cell? I was diagnosed with Sickle Cell (type: SC) when I was around 3 months old. I came to my own personal understanding of being diagnosed with sickle cell around

0 comment Read Full Article
    Genetic Testing for Families

Genetic Testing for Families

Genetic Testing for Families Affected by Genetic Recessive Disorders DNAcheckup is a fairly new non-profit organization geared towards providing affordable DNA testing to families of patients with previously diagnosed recessive genetic disorders. Patients can order the tests online, which will be shipped to them directly. We work with the lab GeneByGene

0 comment Read Full Article
    10th Annual SCD Educational Seminar: Integrative Medicine and Sickle Cell Disease

10th Annual SCD Educational Seminar: Integrative Medicine and Sickle Cell Disease

The 10th Annual Sickle Cell Disease Educational Seminar is a forum to discuss integrative and alternative medicine and future trends for treating patients with sickle cell disease and sickle cell trait awareness.  Attendees will hear presentations from the latest on the opioid epidemic, clinical trials, and alternative medicines to public policy, getting your voice heard with the legislatures

0 comment Read Full Article
    World Sickle Cell Day 2018

World Sickle Cell Day 2018

Hello Warrior Family! Don’t forget, today, Tuesday June 19th is World Sickle Cell Day. This was specially designated by the World Health Organization in 2009 to improve the education, research, and awareness of sickle cell disease on a global scale. For us warriors, it is like your sickle cell birthday!!! We

0 comment Read Full Article
    Tomorrow, June 19, is World Sickle Cell Day!

Tomorrow, June 19, is World Sickle Cell Day!

On World Sickle Cell Day, Sickle Cell Warriors Takes Action to Improve Global Health Outcomes Sickle Cell Warriors, with the American Society of Hematology and other Sickle Cell Disease Coalition partners, debuts a public service announcement and global resources library to help improve newborn screening and early care for children

0 comment Read Full Article
    Novartis to Mark World Sickle Cell Day with Events

Novartis to Mark World Sickle Cell Day with Events

Novartis to Mark World Sickle Cell Day with Events Please join us on June 19 for a worldwide Facebook Live Event in honor of World Sickle Cell Day. The event will feature a panel of global experts and advocates appearing live from Region Europe, LACan, EGM and the US who will share their experience

0 comment Read Full Article
    Special Pricing on Books for World Sickle Cell Day

Special Pricing on Books for World Sickle Cell Day

0 comment Read Full Article

Donate

Support awareness & education for SCD

Announcements

Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

Join the Sickle Cell Warriors Database

Become a warrior. Sign up to be a team leader/member. Get contacted directly by SCW about events and research in your area. YOUR INFORMATION WILL NOT BE SHARED/SOLD TO ANY THIRD PARTIES. (See privacy policy)
Example SS, SC, Beta Thal, Monroe, etc.
You will receive pre-screened research opportunities on sickle cell disease
You will receive info about the sessions on the advocacy training classes
Read more here: http://sicklecellwarriors.com/classes/
* = required field
Interested in local meetups?




powered by MailChimp!

Join us on Facebook!

Archives

Tweets!

have data = false

This is a demo store for testing purposes — no orders shall be fulfilled. Dismiss