Sickle Cell Warriors

Posts From Sickle Cell Warrior

Under Construction

Hey Warrior Family, The website is undergoing a much needed renovation. WE haven’t updated the site since 2013, so it’s undergoing a much needed makeover. Please pardon our technical glitches while we are fixing it up. The goal with the new site is to give you easier access to older posts,

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    Help Sickle Cell Obtain the Rare Disease Pediatric Voucher

Help Sickle Cell Obtain the Rare Disease Pediatric Voucher

Sickle Cell Warriors!!! We need your help!  Please read the letter below and  send your comment into the FDA. We have until February 16th to respond as a community. The deadline is coming up quick! The Pediatric Rare Disease Voucher Program was created for sickle cell disease, however, due to

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    SC Gathering & Educational Symposium Appreciation

SC Gathering & Educational Symposium Appreciation

WOOHOO!!!! We made it! The 2014 Sickle Cell Warriors Gathering is now officially over! Thank you so much for everyone who has attended and made this experience phenomenal. Lakiea & I hope that you found it extremely informative, educational, inspiring, and supportive. There are so many people to thank, so

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    Program for the SCW Gathering & Educational Symposium July 17-20

Program for the SCW Gathering & Educational Symposium July 17-20

2014 Sickle Cell Community Gathering & Education Symposium PROGRAM AGENDA Please note that this schedule is a guideline, but times/rooms/and sessions are not set in stone. Announcements will be made if there are any changes. Always bring your journal or notebook with you. THURSDAY, JULY 17TH   8:00PM – 9:00PM       

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    All About the Sickle Cell Gathering

All About the Sickle Cell Gathering

Hey Warrior Family! We hope you are doing well. Sickle Cell Warriors, Inc. is planning the 2nd Annual Sickle Cell Community Gathering and Educational Symposium. This year it is in Atlanta, GA from July 17-20, 2014 at the DoubleTree by Hilton Hotel in Buckhead. We are delighted to invite you

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    It’s NOT Always Sickle Cell

It’s NOT Always Sickle Cell

In the last few weeks, several warriors have told me that they had other health problems besides sickle cell that was not addressed or diagnosed quickly by their physician because at first, the doctor chalked it up to being a ‘sickle cell’ complaint.

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    Guidelines for the Day of Prayer #SickleCell50

Guidelines for the Day of Prayer #SickleCell50

Here are the Prayer & Meditation Guidelines for the first ever 50 Hour International Day of Prayer for Sickle Cell Disease #SickleCell50

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    April Sickle Cell Warriors International Day of Prayer & Meditation for Sickle Cell Disease

April Sickle Cell Warriors International Day of Prayer & Meditation for Sickle Cell Disease

It’s been a long time coming, but here is our first international challenge that focuses how we can change the world—together.

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    First Quarter Update from SCW, Inc.

First Quarter Update from SCW, Inc.

Remember at the beginning of the year when Lakiea and I promised that this year was going to be EPIC and so different from every other year of SCW? We’ve been working hard to make that happen. We are only 3 months in, and we’ve already stepped it up with

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    Warriors, Please Act Now! #SickleCellTA Social Media Takeover to Support our Advocates!

Warriors, Please Act Now! #SickleCellTA Social Media Takeover to Support our Advocates!

We received this message for Advocacy day. Although you are not in Washington DC, you can still help today. Leave a Facebook message, tweet, or email your state representatives asking them to support the Re-authorization of the Sickle Cell Treatment Act. #sicklecellTA. Read below for more details. Here is how:

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    12 Things You Didn’t Know about Sickle Cell Warriors, Inc.

12 Things You Didn’t Know about Sickle Cell Warriors, Inc.

Ever wanted to learn more about what goes on behind the scenes at Sickle Cell Warriors, Inc? Well here is a short overview to give you further insights.

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    Brrrr! Bundle Up Warriors!

Brrrr! Bundle Up Warriors!

Its cold, freezing, and snowing in most parts of the United States and North America right now. Here are some tips to keep you from going into crisis.

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    Tell the FDA

Tell the FDA

The FDA meeting is coming up on February 7, 2014 in Silver Springs, MD. Sickle cell advocates, patients, families, and members of the health care industry will all be in attendance. Even if you cannot come, your participation is necessary. It is time to use your voice. Tell the FDA

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    Why is the FDA Meeting on Sickle Cell Important?

Why is the FDA Meeting on Sickle Cell Important?

I just turned in my answers to the FDA questions. A member of the SCW Facebook page said this, “What is the big deal with the FDA meeting, and why should we even try to go? Especially since most of us that have sickle cell are on a limited income,

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    Expert Patient Series Register HERE!

Expert Patient Series Register HERE!

Registration for the Expert Patient classes is now open.

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