Sickle Cell Warriors

Posts From Sickle Cell Warrior

    Tips on Going through Nursing School with Sickle Cell

Tips on Going through Nursing School with Sickle Cell

Breonna asks, “Where are all the Warriors in nursing school? I am about to begin my second semester of LPN school and I have two children. What are you doing to stay healthy, avoid stress and pain, and still keep your grades up?” Many of us enter the nursing profession,

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    5 Tips for Managing Avascular Necrosis in Sickle Cell

5 Tips for Managing Avascular Necrosis in Sickle Cell

Many of us with sickle cell suffer from avascular necrosis of the hip, where the bone is damaged by sickle cell blockage, leading to a prolonged limp, pain on that side of the hip and leg, and often to walk with a cane if it gets bad. You don’t have

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Get Well Wednesday: RN Tosin Ola Answers Your Sickle Cell Questions

Hey Warrior Fam, Check out our Founder, Tosin Ola’s interview with the Tom Joyner radio show. Repping for Sickle Cell all the time. Awareness is integral and we all must do our part. Tosin Ola, BSN, RN knows firsthand the challenges of living with sickle-cell disease. The practicing registered nurse,

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Happy New Year! 

Wishing you all the blessings and joy this year. May you find the strength to live your very best life, and keep on fighting until there is a universal cure or multimodal treatment for us all. Love, hugs, and stay blessed. 

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    Isata Lakoh – The Most Important Day

Isata Lakoh – The Most Important Day

The most important day of my life is the day my parents explained the essence of the pain I have gone through majority of my life. Around the age of seven, I was slowly being informed about what made me different from the rest. The very beginning of any child’s

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    Research Study Request: Chronic Pain in Sickle Cell Disease

Research Study Request: Chronic Pain in Sickle Cell Disease

From time to time, we get requests from researchers who would like members of the sickle cell community to participate in various types of research. This inquiry has been pre-screened, and your info will be kept confidential and private. Please use your own judgement, and only proceed if you fee

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    Sickle Cell Action Network at 1pm PST Tuesdays

Sickle Cell Action Network at 1pm PST Tuesdays

Here is another excellent  resource dedicated to sickle cell disease. Gary Gibson, President of the Martin Center Sickle Cell Initiative has been hosting this amazing show for the last few months. Tune in every Tuesday, 1pm PST/4pm EST to get your latest news and happenings in the sickle cell community,

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    Roasted Beets and Sweets

Roasted Beets and Sweets

This recipe has all the earmarks of being perfect for those with sickle cell; great root vegetables, easy to prepare, and rich in thiocyanate

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    Sickle Cell Warrior Heather on Dr. Phil Show

Sickle Cell Warrior Heather on Dr. Phil Show

One of our esteemed Warriors in the Spotlight, Heather Avant was featured on the Dr. Phil show on December 17, 2015. She talks about how it is to live with sickle cell disease, what the pain feels like, going through a VOC, and the stigma that we often face living with

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    IN THE NEWS: September 2015 Edition

IN THE NEWS: September 2015 Edition

Breaking news from all around the world in #sicklecell disease. Stem Cell Transplant Adult Successful stem cell transplant of 12 adults with sibling matches (half-match) at University of Illinois Hospital & Health Sciences, Chicago. 92% cure rate, 1 reversal (that patient did not follow protocol post-transplant). Great news! Read more

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    Mediterranean Carrot and Sweet Potato Stew

Mediterranean Carrot and Sweet Potato Stew

With sickle cell, carrots and potatoes are supposed to be our staples. Here is a recipe that uses them all flawlessly combined with some protein thrown in.

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    Bi-Annual Update of Sickle Cell Warriors™

Bi-Annual Update of Sickle Cell Warriors™

Hello Warrior Family! This letter is a year late but I finally finished it. Apologies for the delay. Read on and you will see why… It’s been a while since I last penned an article on here. Thank you so much to everyone that has emailed, texted, called, and posted

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    World Sickle Cell Day Activities!!!

World Sickle Cell Day Activities!!!

Hello everyone! As you probably know, World Sickle Cell Day is around the corner on June 19th! This was established by the World Health Organization (WHO) and is celebrated all over the world. A few years ago, most of us didn’t know when it was, and if we did, we

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Under Construction

Hey Warrior Family, The website is undergoing a much needed renovation. WE haven’t updated the site since 2013, so it’s undergoing a much needed makeover. Please pardon our technical glitches while we are fixing it up. The goal with the new site is to give you easier access to older posts,

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    Help Sickle Cell Obtain the Rare Disease Pediatric Voucher

Help Sickle Cell Obtain the Rare Disease Pediatric Voucher

Sickle Cell Warriors!!! We need your help!  Please read the letter below and  send your comment into the FDA. We have until February 16th to respond as a community. The deadline is coming up quick! The Pediatric Rare Disease Voucher Program was created for sickle cell disease, however, due to

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Sickle Cell PSA

From CT Sickle Cell Org---my favorite SCD PSA.

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